ArticlePloS one2017
A journey without maps-Understanding the costs of caring for dependent older people in Nigeria, China, Mexico and Peru.
Article in PloS one, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 2 of them syntheses that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
24 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- A systematic review and narrative synthesis of the experiences with caring for older people living with dementia in Sub-Saharan Africa.BMC geriatrics · 2022Pooled it
- In Caring for Older People in Low- and Middle-Income Countries, Do Older Caregivers Have a High Level of Care Burden and Psychological Morbidity Compared to Younger Caregivers?International journal of environmental research and public health · 2022Pooled it
- Distribution, inequalities and associated factors of unmet medical needs among older adults: evidence from the national health service survey.BMC geriatrics · 2026Article
- The patient journey for people with dementia and their carers in Peru: From first symptoms to diagnosis and treatment.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2026Article
- Patterns of Elder Caregiving Among Nigerians: An Integrative Review.International journal of environmental research and public health · 2025Review
- Distinguishing Abuse from Caregiving in Rural Nigeria: Older Adults' Perspectives.Journal of cross-cultural gerontology · 2025Article
- "I don't want to make trouble": Emotional Distress, Disconnection, and Loneliness Among Older People in China.The journals of gerontology. Series B, Psychological sciences and social sciences · 2025Article
- Unmet Needs for Support in Activities of Daily Living among Older Persons: The Effects of Family and Household Structures in a Low- and Middle-Income Context.Geriatrics (Basel, Switzerland) · 2024Article
- Provider and facility readiness for age-friendly health services for older adults in primary health care centres in southwest, Nigeria.PLOS global public health · 2023Article
- Protocol: the complexity of informal caregiving for Alzheimer's disease and related dementias in rural South Africa.Wellcome open research · 2022Article
- The impact of long-term care needs on the socio-economic deprivation of older people and their families: A scoping review protocol.PloS one · 2022Article
- Disability among Older People: Analysis of Data from Disability Surveys in Six Low- and Middle-Income Countries.International journal of environmental research and public health · 2021Article
- Associations between spousal caregiving and health among older adults in Mexico: A targeted estimation approach.International journal of geriatric psychiatry · 2021Article
- Dementia caregiving across Latin America and the Caribbean and brain health diplomacy.The lancet. Healthy longevity · 2021Review
- Loneliness Among Older Adults in Latin America, China, and India: Prevalence, Correlates and Association With Mortality.International journal of public health · 2021Article
- A research agenda for ageing in China in the 21st century (2nd edition): Focusing on basic and translational research, long-term care, policy and social networks.Ageing research reviews · 2020Review
- Current trends and challenges on dementia management and research in Latin America.Journal of global health · 2020Review
- Severity Levels of Disability Among Older Adults in Low- and Middle-Income Countries: Results From the Study on Global Ageing and Adult Health (SAGE).Frontiers in medicine · 2020Article
- Do Income Supplemental Programs for Older Adults' Help Reduce Primary Caregiver Burden? Evidence from Mexico.Journal of cross-cultural gerontology · 2019Article
- Article
Corrections and comments
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Authors and funding
13 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purpose of the studyPopulations in Latin America, Asia and sub-Saharan Africa are rapidly ageing. The extent to which traditional systems of family support and security can manage the care of increased numbers of older people with chronic health problems is unclear. Our aim was to explore the social and economic effects of caring for an older dependent person, including insight into pathways to economic vulnerability. DESIGN &
methodsWe carried out a series of household case studies across urban and rural sites in Peru, Mexico, China and Nigeria (n = 24), as part of a cross-sectional study, nested within the 10/66 Dementia Research Group cohort. Case studies consisted of in-depth narrative style interviews (n = 60) with multiple family members, including the older dependent person.
resultsGovernments were largely uninvolved in the care and support of older dependent people, leaving families to negotiate a 'journey without maps'. Women were de facto caregivers but the traditional role of female relative as caregiver was beginning to be contested. Household composition was flexible and responsive to changing needs of multiple generations but family finances were stretched. IMPLICATIONS: Governments are lagging behind sociodemographic and social change. There is an urgent need for policy frameworks to support and supplement inputs from families. These should include community-based and residential care services, disability benefits and carers allowances. Further enhancement of health insurance schemes and scale-up of social pensions are an important component of bolstering the security of dependent older people and supporting their continued social and economic participation.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.