ArticleBMC health services research2017
Moving towards a more inclusive patient and public involvement in health research paradigm: the incorporation of a trauma-informed intersectional analysis.
Article in BMC health services research, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 101 papers, 10 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
101 citing papers in PubMed, 10 syntheses or guidelines pooled it.
- Outcomes of Experiencing Interpersonal Violence in Autism: A Mixed Methods Systematic Review and Meta-Analysis.Trauma, violence & abuse · 2026Pooled it
- What makes patients engaged: a meta narrative review and multilevel perspective on patient engagement.BMC psychology · 2026Pooled it
- Barriers and Facilitators to The Involvement of Under-Represented Children and Young People (aged 8-25) in Mental Health Research - a Systematic Review.Clinical child and family psychology review · 2025Pooled it
- Facilitators of and barriers to patient and public involvement in mental health research within university settings: a systematic review and meta-synthesis.Psychological medicine · 2025Pooled it
- The concept of intersectionality in bioethics: a systematic review.BMC medical ethics · 2024Pooled it
- Pooled it
- Youth engagement in mental health research: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2023Pooled it
- Frameworks for supporting patient and public involvement in research: Systematic review and co-design pilot.Health expectations : an international journal of public participation in health care and health policy · 2019Pooled it
- A systematic review of qualitative studies of adults' experiences of being assessed for psychological therapies.Health expectations : an international journal of public participation in health care and health policy · 2019Pooled it
- The importance of service-users' perspectives: A systematic review of qualitative evidence reveals overlooked critical features of weight management programmes.Health expectations : an international journal of public participation in health care and health policy · 2018Pooled it
- Valuing student voices: a qualitative study on fair recognition and compensation practices for student partners in mental health research.Research involvement and engagement · 2026Article
- Centring the voices of birth mothers who faced infant removal through the co-production of the MUMS@RISC artwork: an arts-based evaluation of trauma-informed research collaboration and participation.Research involvement and engagement · 2026Article
- Compensating patient partners on health research teams: a qualitative descriptive study of barriers, facilitators, and implications for equity, diversity, and inclusion in Canadian patient-oriented research.Research involvement and engagement · 2026Article
- Disrupting power hierarchies: applying a trauma- informed, intersectional, reflexive engagement strategy.Research involvement and engagement · 2026Article
- Intersectional inequalities in childhood maltreatment and adolescent emotional problems in England: a random-coefficient MAIHDA analysis.Epidemiology and psychiatric sciences · 2026Article
- How Lived Experience Advisory Groups Contribute to the Design and Conduct of Mental Health Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Critically Exploring Self-Harm Through Lived Experience Perspectives: A Survivor-Controlled Integrative Review Employing Participatory Methodology.Health expectations : an international journal of public participation in health care and health policy · 2026Review
- Building capacity for patient-engagement in neuromuscular disease research: A network project.Journal of neuromuscular diseases · 2026Article
- Towards Meaningful Consumer and Community Involvement in Health Research: A Qualitative Study of Consumer and Researcher Experiences.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Training Adolescents and Young Adults to be Partners in Research: Co-Creating the Young Patients' Autoimmune Research and Empowerment Alliance.Health expectations : an international journal of public participation in health care and health policy · 2026Article
41 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe concept of patient engagement in health research has received growing international recognition over recent years. Yet despite some critical advancements, we argue that the concept remains problematic as it negates the very real complexities and context of people's lives. Though patient engagement conceptually begins to disrupt the identity of "researcher," and complicate our assumptions and understandings around expertise and knowledge, it continues to essentialize the identity of "patient" as a homogenous group, denying the reality that individuals' economic, political, cultural, subjective and experiential lives intersect in intricate and multifarious ways. DISCUSSION: Patient engagement approaches that do not consider the simultaneous interactions between different social categories (e.g. race, ethnicity, Indigeneity, gender, class, sexuality, geography, age, ability, immigration status, religion) that make up social identity, as well as the impact of systems and processes of oppression and domination (e.g. racism, colonialism, classism, sexism, ableism, homophobia) exclude the involvement of individuals who often carry the greatest burden of illness - the very voices traditionally less heard in health research. We contend that in order to be a more inclusive and meaningful approach that does not simply reiterate existing health inequities, it is important to reconceptualize patient engagement through a health equity and social justice lens by incorporating a trauma-informed intersectional analysis. This article provides key concepts to the incorporation of a trauma-informed intersectional analysis and important questions to consider when developing a patient engagement strategy in health research training, practice and evaluation. In redefining the identity of both "patient" and "researcher," spaces and opportunities to resist and renegotiate power within the intersubjective relations can be recognized and addressed, in turn helping to build trust, transparency and resiliency - integral to the advancement of the science of patient engagement in health research.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.