Evidence map›Paper›PMID 28775181›Full record

ArticleBMJ open2017

Exploring the patient perspective of fatigue in adults with visual impairment: a qualitative study.

Wouter Schakel, Christina Bode, Hilde P A van der Aa, Carel T J Hulshof, Judith E Bosmans, Gerardus H M B van Rens, Ruth M A van Nispen

Open access · goldAbstract read
In one paragraph

Article in BMJ open, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed, 2 pooled it
1.6field-weighted citation impact, top 17% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed, 2 syntheses or guidelines pooled it, 29 citations in OpenAlex.

  1. The association between visual impairment and fatigue: a systematic review and meta-analysis of observational studies.Ophthalmic & physiological optics : the journal of the British College of Ophthalmic Opticians (Optometrists) · 2019
    Pooled it
  2. Pooled it
  3. Trial
  4. Trial
  5. The Evolving Landscape of Vision Rehabilitation: Current Status and Future Directions.Ophthalmic & physiological optics : the journal of the British College of Ophthalmic Opticians (Optometrists) · 2026
    Review
  6. Development of the International Classification of Functioning, Disability and Health Core Set for Vision Loss: Insights From the Lived Experience of People With Vision Loss.Ophthalmic & physiological optics : the journal of the British College of Ophthalmic Opticians (Optometrists) · 2026
    Article
  7. Spatial Learning in Naturalistic Search With Simulated Vision Loss.Translational vision science & technology · 2026
    Article
  8. Article
  9. Long-term mental health outcomes after corneal transplantation and potential predictors: A multicentre prospective cohort study.Ophthalmic & physiological optics : the journal of the British College of Ophthalmic Opticians (Optometrists) · 2025
    Article
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  13. Article
  14. Subjective and Objective Measures of Daytime Activity and Sleep Disturbance in Retinitis Pigmentosa.Optometry and vision science : official publication of the American Academy of Optometry · 2018
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 4 institutions in 1 country.

Wouter SchakelDepartment of Ophthalmology, VU University Medical Centre and Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.ORCID http://orcid.org/0000-0001-7189-1451
Christina BodeDepartment of Psychology, Health & Technology, University of Twente, Enschede, The Netherlands.
Hilde P A van der AaDepartment of Ophthalmology, VU University Medical Centre and Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.
Carel T J HulshofCoronel Institute of Occupational Health, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands.
Judith E BosmansDepartment of Health Sciences and Amsterdam Public Health Research Institute, Faculty of Earth and Life Sciences, VU University Amsterdam, Amsterdam, The Netherlands.
Gerardus H M B van RensDepartment of Ophthalmology, VU University Medical Centre and Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.
Ruth M A van NispenDepartment of Ophthalmology, VU University Medical Centre and Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.
Amsterdam UMC Location Vrije Universiteit Amsterdam · NLAmsterdam UMC Location University of Amsterdam · NLElkerliek Ziekenhuis · NLUniversity of Twente · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesFatigue is an often mentioned symptom by patients with irreversible visual impairment. This study explored the patient perspective of fatigue in visually impaired adults with a focus on symptoms of fatigue, causes, consequences and coping strategies.

settingTwo large Dutch low vision multidisciplinary rehabilitation organisations.

participants16 visually impaired adults with severe symptoms of fatigue selected by purposive sampling.

methodsA qualitative study involving semistructured interviews. A total of four first-level codes were top-down predetermined in correspondence with the topics of the research question. Verbatim transcribed interviews were analysed with a combination of a deductive and inductive approach using open and axial coding.

resultsParticipants often described the symptoms of fatigue as a mental, daily and physical experience. The most often mentioned causes of fatigue were a high cognitive load, the intensity and amount of activities, the high effort necessary to establish visual perception, difficulty with light intensity and negative cognitions. Fatigue had the greatest impact on the ability to carry out social roles and participation, emotional functioning and cognitive functioning. The most common coping strategies were relaxation, external support, socialising and physical exercise and the acceptance of fatigue.

conclusionsOur results indicate that low vision-related fatigue is mainly caused by population specific determinants that seem different from the fatigue experience described in studies with other patient populations. Fatigue may be central to the way patients react, adapt and compensate to the consequences of vision loss. These findings indicate a need for future research aimed at interventions specifically tailored to the unique aspects of fatigue related to vision loss.

Indexed as

Adaptation, PsychologicalVision, OcularAdultAgedCognitionEmotionsExerciseFatigueFemaleHumansLightMaleMental FatigueMiddle AgedNetherlandsPersons with Visual Disabilitiesfatiguelow visionpatient's perspectivequalitative researchquality of life

Identifiers

PMID28775181
PMCPMC5724118
OpenAlexW2744294155

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.