ArticleJournal of cystic fibrosis : official journal of the European Cystic Fibrosis Society2018
Sexual and reproductive health behaviors and experiences reported by young women with cystic fibrosis.
Article in Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers.
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Who cites it
26 citing papers in PubMed.
- Evaluating pregnancy and neonatal outcomes in mothers with genetic disease using electronic health care records.Genetics in medicine : official journal of the American College of Medical Genetics · 2026Article
- Migration and standing variation in vaginal and rectal yeast populations in recurrent vulvovaginal candidiasis.mSystems · 2025Article
- Fertility and family-building experiences and perspectives of males with cystic fibrosis.Reproductive biology and endocrinology : RB&E · 2025Article
- Anesthetic Management and Considerations for Cesarean Delivery in a Patient With Cystic Fibrosis.Case reports in anesthesiology · 2025Article
- Assessing the health impacts of parenthood on people with cystic fibrosis: the HOPeCF prospective cohort protocol.BMJ open respiratory research · 2024Observational
- Cystic fibrosis.Nature reviews. Disease primers · 2024Review
- Insights and advances in recurrent vulvovaginal candidiasis.PLoS pathogens · 2023Article
- Web-Based Survey Piloting Process as a Model for Developing and Testing Past Contraceptive Use and Pregnancy History: Cystic Fibrosis Case Study.JMIR formative research · 2023Article
- Sexual and Reproductive Health Care Experiences and Perceptions of Women with Congenital Heart Disease.Pediatric cardiology · 2023Article
- Use of estrogen supplementation is associated with higher quality of life scores in women with cystic fibrosis.Journal of clinical & translational endocrinology · 2022Article
- Fertility preservation in women with cystic fibrosis pre-lung transplantation: A mixed methods study.Journal of advanced nursing · 2022Article
- Optimizing sexual and reproductive health across the lifespan in people with cystic fibrosis.Pediatric pulmonology · 2022Review
- Family-building and parenting considerations for people with cystic fibrosis.Pediatric pulmonology · 2022Review
- A model for building a national, patient-driven database to track contraceptive use in women with rare diseases.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Article
- Gynecologic health care for females with cystic fibrosis.Journal of clinical & translational endocrinology · 2021Article
- Findings from a feasibility study of estradiol for hypogonadal women with cystic fibrosis-related bone disease.Pilot and feasibility studies · 2021Article
- Measuring Knowledge of Fertility Preservation in Women With Cystic Fibrosis: Instrument Development and Psychometric Analysis.Nursing for women's health · 2021Article
- Challenges in the use of highly effective modulator treatment for cystic fibrosis.Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society · 2021Review
- Relationship Between Estrogen Treatment and Skeletal Health in Women With Cystic Fibrosis.The American journal of the medical sciences · 2020Article
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Authors and funding
13 authors.
Funding
Abstract
backgroundThe prevalence of general and disease-specific sexual and reproductive health (SRH) concerns is unknown in the United States (U.S.) female CF population. This study aimed to describe and compare the SRH experiences and behaviors of young women with CF with the general U.S. POPULATION:
methodsYoung women with CF ages 15-24years from five geographically diverse U.S. CF centers participated in a survey investigating SRH. Results were summarized and compared to the U.S. National Survey of Family Growth (NSFG) using logistic regression adjusting for confounders.
findingsA total of 188 young women with CF (mean age 19.7±2.7years) completed the survey; data were compared to 1997 NSFG respondents (mean age 19.6±0.10years). Fifty-four percent of women with CF reported having had vaginal sex with a male partner compared to 66% of U.S. women (p=0.55). Women with CF were less likely to have ever used contraception (55% vs. 74%, p=0.0001) or have been tested for sexually transmitted infections in the past year (19% vs. 34%, p=0.001) compared to the general population. Two percent of women with CF reported having ever been pregnant compared to 24% of U.S. women (p<0.0001). One-third of young women with CF reported perceived pubertal delay, 16% urinary incontinence, 16% sexual dysfunction, and 49% yeast infections.
interpretationYoung women with CF face significant SRH concerns and appear to be experiencing gaps in SRH care provision. Opportunities exist for intervention development around this aspect of comprehensive CF care.
fundingCF Foundation (KAZMER15A0); U.S. National Institutes of Health (UL1TR000005).
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.