ArticleBMC musculoskeletal disorders2017
Educational needs in patients with spondyloarthritis in Sweden - a mixed-methods study.
Article in BMC musculoskeletal disorders, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05504616 (Physical Activity in Axial Spondyloarthritis), which is not on this map. Cited by 11 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Physical Activity in Axial Spondyloarthritis: Development and Implementation of an Evidence-Based Health Technology Approach to Improve Adherence to Recommended Guidelines
Who cites it
11 citing papers in PubMed.
- The Impact of a Theory-Based mHealth Intervention on Disease Knowledge, Self-efficacy, and Exercise Adherence Among Ankylosing Spondylitis Patients: Randomized Controlled Trial.Journal of medical Internet research · 2022Trial
- Improving exercise adherence in ankylosing spondylitis through individualized education and follow-up: a pilot randomized trial.Irish journal of medical science · 2026Article
- Lifestyle discussions facilitate self-management in RA: a qualitative study of patients' perceptions.BMC rheumatology · 2024Article
- Article
- Psychometric Properties of the Turkish Version of Spondyloarthritis Knowledge Questionnaire: A Methodological Study.European journal of rheumatology · 2024Article
- Which Educational Topics and Smartphone App Functions Are Prioritized by US Patients With Rheumatic and Musculoskeletal Diseases? A Mixed-Methods Study.The Journal of rheumatology · 2024Article
- Educational needs and its associated factors among patients with ankylosing spondylitis in China: a multicenter cross-sectional study.Frontiers in public health · 2024Article
- Patients' Needs Concerning Patient Education in Axial Spondyloarthritis: A Qualitative Study.Rheumatology and therapy · 2023Article
- Exploring the educational needs of patients with systemic vasculitis using the educational needs assessment tool.Rheumatology advances in practice · 2022Article
- Evaluating Chinese Mobile Health Apps for Ankylosing Spondylitis Management: Systematic App Search.JMIR mHealth and uHealth · 2021Article
- Validation of the Italian Version of the Educational Needs Assessment Tool in Rheumatoid Arthritis Patients and Factors Associated with Educational Needs.Journal of personalized medicine · 2020Article
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThere is a demand for a flexible and individually tailored patient education to meet patients' specific needs and priorities, but this area has seldom been studied in patients with spondyloarthritis (SpA), a family of inflammatory rheumatic diseases. The aim of the present study was to identify needs and priorities in patient education in patients with SpA. A second aim was to investigate patients' experiences and preferences of receiving patient education.
methodsData collection included a questionnaire survey with the Educational Needs Assessment Tool (ENAT) and interviews, using a mixed-methods design. Patients were identified through a specialist clinic register. Descriptive data are presented as mean with standard deviation, or frequencies. Chi-square test and independent-samples t-test were used for group comparisons. A manifest qualitative conventional content analysis was conducted to explore patients' experiences and needs in patient education, based on two focus groups (n = 6) and five individual interviews.
resultsAlmost half (43%) of the 183 SpA patients had educational needs, particularly regarding aspects of self-help, feelings, and the disease process. More educational needs were reported by women and in patients with higher disease activity, while duration of disease did not affect the needs. The qualitative analysis highlighted the importance of obtaining a guiding, reliable, and easily available patient education for management of SpA. Individual contacts with healthcare professionals were of importance, but newer media were also requested.
conclusionThere are considerable educational needs in patients with SpA, and education concerning self-help, feelings, and the diseases process were raised as important issues. Healthcare professionals need to consider the importance of presenting varied formats of education based on the experiences and preferences of patients with SpA.
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