Evidence map›Paper›PMID 28768067›Full record

SynthesisHealth expectations : an international journal of public participation in health care and health policy2018

"This illness diminishes me. What it does is like theft": A qualitative meta-synthesis of people's experiences of living with asthma.

Kristen Pickles, Daniela Eassey, Helen K Reddel, Louise Locock, Susan Kirkpatrick, Lorraine Smith

Abstract readSystematic Review
PubMed Full text at PMC Publisher
In one paragraph

Synthesis in Health expectations : an international journal of public participation in health care and health policy, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. "This illness diminishes me. What it does is like theft": A qualitative meta-synthesis of people's experiences of living with asthma.Health expectations : an international journal of public participation in health care and health policy · 2018
    Pooled it
  3. Article
  4. Article
  5. Article
  6. Article
  7. A mixed-methods analysis of younger adults' perceptions of asthma, self-management, and preventive care: "This isn't helping me none".Clinical and experimental allergy : journal of the British Society for Allergy and Clinical Immunology · 2021
    Article
  8. Review
  9. Article
  10. Article
  11. An integrated operational definition and conceptual model of asthma self-management in teens.The Journal of asthma : official journal of the Association for the Care of Asthma · 2018
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Kristen PicklesCentre for Values, Ethics & the Law in Medicine, University of Sydney, Sydney, NSW, Australia.
Daniela EasseyFaculty of Pharmacy, University of Sydney, Sydney, NSW, Australia.ORCID 0000-0002-9164-9205
Helen K ReddelWoolcock Institute of Medical Research, University of Sydney, Sydney, NSW, Australia.
Louise LocockNuffield Department of Primary Care Health Science, University of Oxford, Oxford, UK.
Susan KirkpatrickNuffield Department of Primary Care Health Science, University of Oxford, Oxford, UK.
Lorraine SmithFaculty of Pharmacy, University of Sydney, Sydney, NSW, Australia.

Funding

Chief Scientist Office HSRU2
6 · The paper itself

Abstract

backgroundWhat matters to people in their everyday experiences of living with asthma is influenced by a diverse range of personal, social, medical and environmental factors. Previous reviews of the asthma literature have largely focused on medical aspects of asthma or specific population groups with particular needs.

objectiveTo identify, describe and synthesize from the available qualitative literature the views and experiences of adults living with asthma.

methodWe systematically searched for qualitative studies reporting on the personal experience of living with asthma. A meta-synthesis approach was used to analyse and interpret the data. Key themes relating to personal perspectives on asthma were identified and grouped into overarching concepts.

resultsWe identified 26 studies. There was a paucity of literature on the physical burden of asthma symptoms and the role of social support. Our synthesis generated a central concept of the "work" associated with living with asthma: work was of a personal nature, and at times an intensely emotional experience. Individuals tailored their behaviour in response to demands of the physical and social environment, including interactions with health-care professionals.

conclusionThis is the first systematic review of the qualitative literature reporting on people's own perspectives of living with asthma. Our findings draw attention to the nuances and sensitivities surrounding patient experiences of self-management. Medical care is a central plank of managing chronic conditions, but our health-care systems are now expected to deliver patient-centred care. Considering the broader aspects of asthma management, beyond that of symptoms and treatment, will help to facilitate comprehensive care.

Indexed as

Chronic DiseaseSelf-ManagementAsthmaHealth PersonnelHumansQualitative ResearchQuality of LifeSocial Supportadultsasthmachronic illnesslived experiencequalitative synthesis

Identifiers

PMID28768067
PMCPMC5750696

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.