ArticlePeritoneal dialysis international : journal of the International Society for Peritoneal Dialysis
Standardized Outcomes in Nephrology-Peritoneal Dialysis (SONG-PD): Study Protocol for Establishing a Core Outcome Set in PD.
Article in Peritoneal dialysis international : journal of the International Society for Peritoneal Dialysis. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 5 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
17 citing papers in PubMed, 5 syntheses or guidelines pooled it, 66 citations in OpenAlex.
- Pooled it
- Interventions for improving health literacy in people with chronic kidney disease.The Cochrane database of systematic reviews · 2022Pooled it
- Fatigue in incident peritoneal dialysis and mortality: A real-world side-by-side study in Brazil and the United States.PloS one · 2022Pooled it
- Systematic review of international Delphi surveys for core outcome set development: representation of international patients.BMJ open · 2020Pooled it
- Pooled it
- Article
- Impact of Remote Monitoring on Standardized Outcomes in Nephrology-Peritoneal Dialysis.Kidney international reports · 2024Article
- Article
- Home Dialysis Does Not Have the Monopoly on Low Cost.Kidney international reports · 2023Article
- Epidemiology of peritoneal dialysis outcomes.Nature reviews. Nephrology · 2022Review
- Article
- The Core Outcome DEvelopment for Carrier Screening (CODECS) study: protocol for development of a core outcome set.Trials · 2021Article
- Article
- An international Delphi survey helped develop consensus-based core outcome domains for trials in peritoneal dialysis.Kidney international · 2019Article
- Patient and Caregiver Priorities for Outcomes in Peritoneal Dialysis: Multinational Nominal Group Technique Study.Clinical journal of the American Society of Nephrology : CJASN · 2019Article
- Renal Outcomes of Antidiabetic Treatment Options for Type 2 Diabetes-A Proposed MARE Definition.Kidney international reports · 2018Review
- Declaration of Santo Domingo: commitment to improve education, regulations, public policies, and access to peritoneal dialysis in Latin America.Jornal brasileiro de nefrologiaArticle
Corrections and comments
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Authors and funding
19 authors at 14 institutions in 9 countries.
Funding
Abstract
backgroundWorldwide, approximately 11% of patients on dialysis receive peritoneal dialysis (PD). Whilst PD may offer more autonomy to patients compared with hemodialysis, patient and caregiver burnout, technique failure, and peritonitis remain major challenges to the success of PD. Improvements in care and outcomes are likely to be mediated by randomized trials of innovative therapies, but will be limited if the outcomes measured and reported are not important for patients and clinicians. The aim of the Standardised Outcomes in Nephrology-Peritoneal Dialysis (SONG-PD) study is to establish a set of core outcomes for trials in patients on PD based on the shared priorities of all stakeholders, so that outcomes of most relevance for decision-making can be evaluated, and that interventions can be compared reliably.
methodsThe 5 phases in the SONG-PD project are: a systematic review to identify outcomes and outcome measures that have been reported in randomized trials involving patients on PD; focus groups using nominal group technique with patients and caregivers to identify, rank, and describe reasons for their choice of outcomes; semi-structured key informant interviews with health professionals; a 3-round international Delphi survey involving a multi-stakeholder panel; and a consensus workshop to review and endorse the proposed set of core outcome domains for PD trials. DISCUSSION: The establishment of 3 to 5 high-priority core outcomes, to be measured and reported consistently in all trials in PD, will enable patients and clinicians to make informed decisions about the relative effectiveness of interventions, based upon outcomes of common importance.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.