ArticleBMC medical informatics and decision making2017
Developing a patient decision aid for the treatment of women with early stage breast cancer: the struggle between simplicity and complexity.
Article in BMC medical informatics and decision making, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05477420 (A Survey Study and Effect of Web-based Decision Aids on Preferences Shift), which is not on this map. Cited by 19 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
A Survey Study and Effect of Web-based Decision Aids on Preferences Shift
Who cites it
19 citing papers in PubMed, 1 synthesis or guideline pooled it, 42 citations in OpenAlex.
- Experiences of Using Patient Decision Aids for Decisions About Cancer Treatment: A Meta-Aggregation of Qualitative Studies.Cancer nursingPooled it
- Impact of a Digital Decision Aid When Choosing Between Face-to-Face and Guided Internet-Based Psychological Interventions for Depression Among Chinese-Speaking Participants in Hong Kong: Randomized Controlled Trial.Journal of medical Internet research · 2025Trial
- Designing user-centered evaluations: Leveraging beta-testing results to develop process evaluation interview questions for the AMPLIFY program.PLOS digital health · 2026Article
- Development of a Patient Decision Aid to Prevent Firearm Suicide Among US Women Reserve and National Guard Veterans.Journal of general internal medicine · 2026Article
- Patient preferences for treatment pathways in early-stage breast cancer: application of a discrete choice experiment.Future oncology (London, England) · 2025Article
- The Implementation of Shared Decision-Making Using Patient Decision Aid Tools to Select Breast Cancer Treatment Options: A Systematic Review in the Time of Minimum Quality Standards.Healthcare (Basel, Switzerland) · 2025Review
- How Inclusive Are Patient Decision Aids for People with Limited Health Literacy? An Analysis of Understandability Criteria and the Communication about Options and Probabilities.Medical decision making : an international journal of the Society for Medical Decision Making · 2025Article
- Implementing shared decision-making interventions in breast cancer clinical practice: a scoping review.BMC medical informatics and decision making · 2023Article
- Alpha Test of the Donor Conception Tool to Empower Parental Telling and Talking.Journal of obstetric, gynecologic, and neonatal nursing : JOGNN · 2022Article
- Development of a patient decision aid for patients with breast cancer who consider immediate breast reconstruction after mastectomy.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Systematic Development of Patient Decision Aids: An Update from the IPDAS Collaboration.Medical decision making : an international journal of the Society for Medical Decision Making · 2021Article
- Implementing a breast cancer patient decision aid: Process evaluation using medical files and the patients' perspective.European journal of cancer care · 2021Article
- Research progress in decision-making aids for breast cancer patients.Zhong nan da xue xue bao. Yi xue ban = Journal of Central South University. Medical sciences · 2021Article
- The Next Step Toward Patient-Centeredness in Multidisciplinary Cancer Team Meetings: An Interview Study with Professionals.Journal of multidisciplinary healthcare · 2021Article
- Elicitation of preferences in the second half of the shared decision making process needs attention; a qualitative study.BMC health services research · 2020Article
- What matters to me - a web-based preference elicitation tool for clients in long-term care: a user-centred design.BMC medical informatics and decision making · 2020Article
- Article
- An evaluation of oncofertility decision support resources among breast cancer patients and health care providers.BMC health services research · 2019Article
- Patient Perceptions of a Decision Support Tool for Men with Localized Prostate Cancer.MDM policy & practiceArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundA patient decision aid (PtDA) can support shared decision making (SDM) in preference-sensitive care, with more than one clinically applicable treatment option. The development of a PtDA is a complex process, involving several steps, such as designing, developing and testing the draft with all the stakeholders, known as alpha testing. This is followed by testing in 'real life' situations, known as beta testing, and then finalising the definite version. Our aim was developing and alpha testing a PtDA for primary treatment of early stage breast cancer, ensuring that the tool is considered relevant, valid and feasible by patients and professionals.
methodsOur qualitative descriptive study applied various methods including face-to-face think-aloud interviews, a focus group and semi-structured telephone interviews. The study population consisted of breast cancer patients facing the choice between breast-conserving therapy with or without preceding neo-adjuvant chemotherapy and mastectomy, and professionals involved in breast cancer care in dedicated multidisciplinary breast cancer teams.
resultsA PtDA was developed in four iterative test rounds, taking nearly 2 years, involving 26 patients and 26 professionals. While the research group initially opted for simplicity for the sake of implementation, the clinicians objected that the complexity of the decision could not be ignored. Other topics of concern were the conflicting views of professionals and patients regarding side effects, the amount of information and how to present it.
conclusionThe development was an extensive process, because the professionals rejected the simplifications proposed by the research group. This resulted in the development of a completely new draft PtDA, which took double the expected time and resources. The final version of the PtDA appeared to be well-appreciated by professionals and patients, although its acceptability will only be proven in actual practice (beta testing).
trial registrationNTR TC 5721 .
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.