Evidence map›Paper›PMID 28755035›Full record

ArticleJournal of autism and developmental disorders2017

Brief Report: What Happens When I Can No Longer Support My Autistic Relative? Worries About the Future for Family Members of Autistic Adults.

Renske Herrema, Deborah Garland, Malcolm Osborne, Mark Freeston, Emma Honey, Jacqui Rodgers

Abstract read
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In one paragraph

Article in Journal of autism and developmental disorders, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Renske HerremaFaculty of Medical Sciences, Institute of Neuroscience, Newcastle University, Newcastle Upon Tyne, UK.
Deborah GarlandNational Autistic Society, Newcastle Upon Tyne, UK.
Malcolm OsborneThe Kayaks Support Group, Tyne and Wear, UK.
Mark FreestonFaculty of Medical Sciences, School of Psychology, Newcastle University, Newcastle Upon Tyne, UK.
Emma HoneyFaculty of Medical Sciences, School of Psychology, Newcastle University, Newcastle Upon Tyne, UK.
Jacqui RodgersFaculty of Medical Sciences, Institute of Neuroscience, Newcastle University, Newcastle Upon Tyne, UK. jacqui.rodgers@ncl.ac.uk.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Very little is known about autism and adulthood. Family members are often the primary support for autistic adults and frequently express concerns about what the future will hold and what support will be available for their relative. 120 family members of autistic adults completed an online survey exploring concerns about the future for their relative. The most endorsed concerns were "their needs won't be met" (77% worried weekly), "whether they will be happy" (72% worried weekly) and "who will care for them" (58% worried weekly). The results highlight the importance of implementing structured and timely support through collaboration with governmental policy, local commissioning and communication with charities to help prepare family members and their autistic relative for the future.

Indexed as

AdultAgedAutistic DisorderCaregiversFamilyFemaleHumansMaleMiddle AgedSurveys and QuestionnairesAdultsAutismFamily membersFutureSupportWorry

Identifiers

PMID28755035

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.