ArticleAutism : the international journal of research and practice2018
Addressing medical needs of adolescents and adults with autism spectrum disorders in a primary care setting.
Article in Autism : the international journal of research and practice, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 54 papers, 3 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
54 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Factors influencing oral health behaviours, access and delivery of dental care for autistic children and adolescents: A mixed-methods systematic review.Health expectations : an international journal of public participation in health care and health policy · 2022Pooled it
- Healthcare access for autistic adults: A systematic review.Medicine · 2020Pooled it
- A Systematic Review of What Barriers and Facilitators Prevent and Enable Physical Healthcare Services Access for Autistic Adults.Journal of autism and developmental disorders · 2019Pooled it
- Acceptability and Implementation of a Primary Care Health Check for Autistic People: Findings From Evaluation Questionnaires and Interviews.Autism : the international journal of research and practice · 2026Trial
- A Population-Based Cross-Sectional Investigation of COVID-19 Hospitalizations and Mortality Among Autistic People.Journal of autism and developmental disorders · 2026Article
- Using an Instructional Package to Support Adults with Autism in Communicating with a Medical Provider.Journal of autism and developmental disorders · 2026Article
- A scoping review to inform an auditing framework evaluating healthcare environments for inclusion of people with intellectual disability and/or autism.Journal of intellectual disabilities : JOID · 2026Article
- Impact of nurse-led home visits on medication management and use of medical screenings for adults with intellectual disabilities: a randomised-controlled trial.BMC nursing · 2026Article
- An Adult Autism Training With Case Studies and Standardized Patient Encounters for Internal Medicine and Family Medicine Residents.MedEdPORTAL : the journal of teaching and learning resources · 2026Article
- Formative evaluation of PREPARE for Autistic Adults: An adult autism training for resident physicians designed with autistic adults and family members.Autism in adulthood · 2025Article
- Varying Effects of Antipsychotics and Attention-Deficit Hyperactivity Disorder Medications on Body Mass Index among a Cohort of Autistic Youth.Journal of pediatrics. Clinical practice · 2025Article
- The dynamic trajectory of autistic life and its changing challenges: a scoping review.BMC psychiatry · 2025Article
- Advances in research on SATB2 and its role in tumor development.Cell & bioscience · 2025Review
- Continuation of Pediatric Care after Transfer to Adult Care Among Autistic Youth Overlap of Pediatric and Adult Care.Journal of autism and developmental disorders · 2025Article
- Development of PREPARE for Autistic Adults: An Adult Autism Training for Resident Physicians Designed with Autistic Adults and Family Members.Autism in adulthood · 2025Article
- Prob-sparse self-attention extraction of time-aligned dynamic functional connectivity for ASD diagnosis.Heliyon · 2025Article
- Barriers and facilitators to primary healthcare encounters as reported by autistic adults: a qualitative study.Frontiers in medicine · 2025Article
- Health checks for autistic adults: study protocol for a cluster randomised controlled trial.Trials · 2024Article
- The use of telehealth in attention-deficit/hyperactivity disorder: a survey of parents and caregivers.European child & adolescent psychiatry · 2024Article
- Review
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Little has been reported about how to improve health care access and delivery for adolescents and adults with autism spectrum disorder. To understand the contributions to the health disparities in the autism spectrum disorder population, we conducted two independent research approaches to learn about current medical needs. A retrospective chart review was performed to evaluate medical comorbidities and medication use. A focus group was also created to address barriers faced in providing medical care. Of 126 charts reviewed, 49% (n = 62) had intellectual disability, 49% (n = 62) had attention-deficit hyperactivity disorder, 52% (n = 65) had anxiety, 41% (n = 52) had obesity, 31% (n = 39) with a history of aggressive behavior, 31% (n = 31) had depression, 22% (n = 28) had seizures, and 9% (n = 11) had hypertension. A Medical Regimen Complexity Index score was determined to examine medication use trends in the autism spectrum disorder population. Medical Regimen Complexity Index scores were significantly higher for patients with intellectual disability, patients with seizures, and patients with a history of aggressive behavior. Both the focus group and our pre-visit assessment identified the waiting room and waiting time as barriers to care. Understanding the comorbidities, polypharmacy, and medical barriers should provide a better understanding of the current health care access and delivery needs of adolescents and adults with autism spectrum disorder.
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