ArticleJournal of perinatology : official journal of the California Perinatal Association2017
Communicating prognosis with parents of critically ill infants: direct observation of clinician behaviors.
Article in Journal of perinatology : official journal of the California Perinatal Association, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed.
- Communication of Illness Severity to Parents in the Neonatal Intensive Care Unit: A Scoping Review of Communication Characteristics and Prognostic Framing.Children (Basel, Switzerland) · 2026Review
- Shifting sands: How parents engage with the idea of their child's death.Palliative & supportive care · 2026Article
- Shifting the narrative: reframing paediatric palliative care to enable earlier engagement.BMJ paediatrics open · 2026Review
- Parental Values During Tracheostomy Decision-Making for Their Critically Ill Child: Interviews of Parents Who Just Made the Decision.Children (Basel, Switzerland) · 2025Article
- Breaking bad news: Comparing the perception of the role, barriers and experiences of neonatal intensive care and well-baby nursery nurses.Nursing in critical care · 2025Article
- Prognostic Discussion for Infants with Neurologic Conditions: Qualitative Analysis of Family Conferences.Annals of neurology · 2022Article
- Isolated and On Guard: Preparing Neonatal Intensive Care Unit Families for Life with Hydrocephalus.American journal of perinatology · 2022Article
- Role of Social Workers in Family Conferences for Critically Ill Infants.Journal of palliative medicine · 2022Observational
- Assessment of parent understanding in conferences for critically ill neonates.Patient education and counseling · 2022Article
- Article
- Ethical considerations in the care of encephalopathic neonates treated with therapeutic hypothermia.Seminars in fetal & neonatal medicine · 2021Article
- Optimism bias in understanding neonatal prognoses.Journal of perinatology : official journal of the California Perinatal Association · 2021Article
- Article
- Interprofessional Teamwork During Family Meetings in the Pediatric Cardiac Intensive Care Unit.Journal of pain and symptom management · 2019Observational
- Pediatric Palliative Care in Infants and Neonates.Children (Basel, Switzerland) · 2018Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
objectiveDelivering prognostic information to families requires clinicians to forecast an infant's illness course and future. We lack robust empirical data about how prognosis is shared and how that affects clinician-family concordance regarding infant outcomes. STUDY
designProspective audiorecording of neonatal intensive care unit family conferences, immediately followed by parent/clinician surveys. Existing qualitative analysis frameworks were applied.
resultsWe analyzed 19 conferences. Most prognostic discussion targeted predicted infant functional needs, for example, medications or feeding. There was little discussion of how infant prognosis would affect infant/family quality of life. Prognostic framing was typically optimistic. Most parents left the conference believing their infant's prognosis to be more optimistic than did clinicians.
conclusionsClinician approach to prognostic disclosure in these audiotaped family conferences tended to be broad and optimistic, without detail regarding implications of infant health for infant/family quality of life. Families and clinicians left these conversations with little consensus about infant prognosis.
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Registered trials
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