ReviewPLoS biology2017
Genes, cells, and biobanks: Yes, there's still a consent problem.
Review in PLoS biology, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 46 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
46 citing papers in PubMed.
- Researchers are building computers that run on brain organoids - but have neglected a major ethical issue.Nature · 2026Article
- Assessment of biobank awareness among medical students in Iran.Journal of community genetics · 2025Article
- Identifying High-Priority Ethical Challenges for Precision Emergency Medicine: Nominal Group Study.JMIR formative research · 2025Article
- Ethical, Legal, and Practical Concerns Surrounding the Implemention of New Forms of Consent for Health Data Research: Qualitative Interview Study.Journal of medical Internet research · 2024Article
- Perception of Polish patients with cancer of the ethical and legal issues related to biobank research.The oncologist · 2024Article
- Sculpting the future: A narrative review of 3D printing in plastic surgery and prosthetic devices.Health science reports · 2024Article
- Efficient Use of Biological Data in the Web 3.0 Era by Applying Nonfungible Token Technology.Journal of medical Internet research · 2024Article
- Article
- Consent as a compositional act - a framework that provides clarity for the retention and use of data.Philosophy, ethics, and humanities in medicine : PEHM · 2024Article
- From opt-out to opt-in consent for secondary use of medical data and residual biomaterial: An evaluation using the RE-AIM framework.PloS one · 2024Article
- How to Design Consent for Health Data Research? An Analysis of Arguments of Solidarity.Public health ethics · 2023Article
- Awareness, Attitudes and Willingness to Donate Biological Samples to a Biobank: A Survey of a Representative Sample of Polish Citizens.Healthcare (Basel, Switzerland) · 2023Article
- Persuasive Appeals in Genetic Biobank Recruitment Campaigns: Social and Ethical Implications.Journal of empirical research on human research ethics : JERHRE · 2023Article
- Cluster Donation: How Future Healthcare Professionals Bound Certain Types of Tissues and Biomedical Research and How It Affects Their Willingness to Donate.Healthcare (Basel, Switzerland) · 2023Article
- GBA/GBN-position on the feedback of incidental findings in biobank-based research: consensus-based workflow for hospital-based biobanks.European journal of human genetics : EJHG · 2023Article
- To donate or not to donate? Future healthcare professionals' opinions on biobanking of human biological material for research purposes.BMC medical ethics · 2023Article
- UPO Biobank: The Challenge of Integrating Biobanking into the Academic Environment to Support Translational Research.Journal of personalized medicine · 2023Article
- Partnering with First Nations in Northern British Columbia Canada to Reduce Inequity in Access to Genomic Research.International journal of environmental research and public health · 2023Article
- Cohort profile: A Québec-based plasma donor biobank to study COVID-19 immunity (PlasCoV).BMJ open · 2023Article
- Reconsenting paediatric research participants for use of identifying data.Journal of medical ethics · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
From a research perspective, the interest in biobanking continues to intensify. Governments and industry have invested heavily in biobanks, as exemplified by initiatives like the United Kingdom Biobank and United States' Precision Medicine Initiative. But despite this enthusiasm, many profound legal and ethical challenges remain unresolved. Indeed, there continues to be disagreements about how best to obtain consent and the degree and nature of control that research participants retain over donated samples and health information. Emerging social trends-including concerns about commercialization and perceived rights of continuing control ("biorights")-seem likely to intensify these issues.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.