ArticleAfrican journal of disability2016
Parental stress and support of parents of children with spina bifida in Uganda.
Article in African journal of disability, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
What it found
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Who cites it
7 citing papers in PubMed.
- Family dynamics after diagnosis and surgical treatment of myelomeningocele: using telemedicine as a complementary tool.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2025Review
- Practice of clean intermittent catheterisation in children with spina bifida: A scoping review.African journal of disability · 2024Article
- Parental Stress in Raising a Child with Developmental Disabilities in a Rural Community in South Africa.International journal of environmental research and public health · 2023Article
- Family quality of life for families of children with disabilities in African contexts: a scoping review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
- Family disability, poverty and parenting stress: Analysis of a cross-sectional study in Kenya.African journal of disability · 2021Article
- Seeking tirelessly for better health and life conditions for the child with myelomeningocele.Revista latino-americana de enfermagem · 2021Article
- Including parents in inclusive practice: Supporting students with disabilities in higher education.African journal of disability · 2019Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundChildren with disabilities in Sub-Saharan Africa depend for a large part of their functioning on their parent or caregiver. This study explores parental stress and support of parents of children with spina bifida in Uganda.
objectivesThe study aimed to explore perceived stress and support of parents of children with spina bifida living in Uganda and the factors that influence them.
methodsA total of 134 parents were interviewed. Focus group discussions were held with four parent support groups in four different regions within the country. The Vineland Adaptive Behaviour Scales, Daily Functioning Subscales and Parental Stress Index Short Form (PSI/SF) were administered to measure the child's daily functioning level and parental stress levels.
resultsParental stress was high in our study population with over half of the parents having a > 90% percentile score on the PSI/SF. Stress outcomes were related to the ability to walk (Spearman's correlation coefficient [
conclusionParents of children with spina bifida experience high levels of stress. To reduce this stress, rehabilitation services should focus on improving mobility. Advocacy to reduce stigmatisation and peer support networks also need to be strengthened and developed.
Identifiers
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Registered trials
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