Evidence map›Paper›PMID 28728497›Full record

ArticleJournal of empirical research on human research ethics : JERHRE2017

The Significance of Benefit Perceptions for the Ethics of HIV Research Involving Adolescents in Kenya.

Stuart Rennie, Allison K Groves, Denise Dion Hallfors, Bonita J Iritani, Fredrick S Odongo, Winnie K Luseno

Abstract read
In one paragraph

Article in Journal of empirical research on human research ethics : JERHRE, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed, 2 pooled it
2.0field-weighted citation impact, top 13% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed, 2 syntheses or guidelines pooled it, 21 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
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  8. Review
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  12. HIV-Related Stigma Shapes Research Participation for Youth Living With HIV in Kenya.Journal of the International Association of Providers of AIDS Care
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 5 institutions in 2 countries.

Stuart Rennie1 The University of North Carolina at Chapel Hill, NC, USA.
Allison K Groves2 Drexel University, Philadelphia, PA, USA.
Denise Dion Hallfors3 Pacific Institute for Research and Evaluation, Chapel Hill, NC, USA.
Bonita J Iritani3 Pacific Institute for Research and Evaluation, Chapel Hill, NC, USA.
Fredrick S Odongo4 Kenya Medical Research Institute, Kisumu, Kenya.
Winnie K Luseno3 Pacific Institute for Research and Evaluation, Chapel Hill, NC, USA.
Institute for Research and Evaluation · USDrexel University · USKenya Medical Research Institute · KEPacific Institute For Research and Evaluation · USUniversity of North Carolina at Chapel Hill · US

Funding

Virology, Immunology, and Microbiology CoreP30AI050410 · NIAID · UNIV OF NORTH CAROLINA CHAPEL HILL · PI DAVID M. MARGOLIS · 2001 to 2026
$76.9M
Ethics of HIV-Related Research Involving Adolescents in KenyaR01MH102125 · NIMH · PACIFIC INSTITUTE FOR RES AND EVALUATION · PI LUSENO, WINFRED K · 2014 to 2018
$3.7M
NIAID NIH HHS P30 AI050410NIMH NIH HHS R01 MH102125
6 · The paper itself

Abstract

Assessment of benefits is traditionally regarded as crucial to the ethical evaluation of research involving human participants. We conducted focus group discussions (FGDs) with health and other professionals engaged with adolescents, caregivers/parents, and adolescents in Siaya County, Kenya, to solicit opinions about appropriate ways of conducting HIV research with adolescents. Our data revealed that many focus group participants have a profoundly positive conception of participation in health research, including studies conferring seemingly few benefits. In this article, we identify and analyze five different but interrelated types of benefits as perceived by Kenyan adolescent and adult stakeholders in HIV research, and discuss their ethical significance. Our findings suggest that future empirical and conceptual research should concentrate on factors that may trigger researcher obligations to improve benefit perceptions among research participants.

Indexed as

AttitudeBeneficenceHIV InfectionsResearch SubjectsStakeholder ParticipationAdolescentAdultAdvisory CommitteesBehavioral ResearchCaregiversEthics, ResearchFemaleFocus GroupsHumansKenyaMaleadolescentsbenefitsHIV/AIDSKenyaresearch ethics

Identifiers

PMID28728497
PMCPMC5595631
OpenAlexW2737213672

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.