ArticleNPJ Parkinson's disease2016
Living with chronic illness scale: international validation of a new self-report measure in Parkinson's disease.
Article in NPJ Parkinson's disease, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
17 citing papers in PubMed.
- Feasibility and acceptability of the cross-national multisectoral OPTIM-PARK intervention for people affected with Parkinson's disease and their family carers.BMC health services research · 2026Article
- Psychological Adjustment Measures for Chronic Illness: A Narrative Review.Iranian journal of psychiatry · 2025Review
- Living with long-term conditions: validation of a new instrument for family caregivers in a Spanish-speaking population.BMJ open · 2024Observational
- Methodological Proposal for the Adaptation of the Living with Long-Term Conditions Scale to the Family Caregiver.Nursing reports (Pavia, Italy) · 2024Article
- Observational
- First validation study of the living with long term conditions scale (LwLTCs) among English-speaking population living with Parkinson's disease.Health and quality of life outcomes · 2023Observational
- Development and testing of the reliability and validity of a Chinese version of the Long-Term Conditions Questionnaire.Zhejiang da xue xue bao. Yi xue ban = Journal of Zhejiang University. Medical sciences · 2023Article
- Living with Chronic Illness Scale: International validation through the classic test theory and Rasch analysis among Spanish-speaking populations with long-term conditions.Health expectations : an international journal of public participation in health care and health policy · 2021Observational
- Living with Long term condition Scale: A pilot validation study of a new person centred tool in the UK.Nursing open · 2021Article
- Validation of living with chronic illness scale in a type 2 diabetes mellitus population.Health and quality of life outcomes · 2021Observational
- Observational
- Psychometric Validation of the Living with Chronic Illness Scale in Patients with Chronic Heart Failure.International journal of environmental research and public health · 2021Article
- Rasch analysis of the living with chronic illness scale in Parkinson's disease.BMC neurology · 2020Article
- [Living with Chronic Illness Scale: Pilot study in patients with several chronic diseases].Atencion primaria · 2020Observational
- A pilot study on the Spanish version of the Psychosocial Adjustment to Illness Scale (PAIS-SR) with carers of people with Parkinson's disease.Nursing open · 2019Article
- The Impact of Living with Parkinson's Disease: Balancing within a Web of Needs and Demands.Parkinson's disease · 2018Article
- Observational
Corrections and comments
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Authors and funding
13 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Understanding how a person lives with a chronic illness, such as Parkinson's disease (PD), is necessary to provide individualized care and professionals role in person-centered care at clinical and community levels is paramount. The present study was aimed to analyze the psychometric properties of the Living with Chronic Illness-PD Scale (EC-PC) in a wide Spanish-speaking population with PD. International cross-sectional study with retest was carried out with 324 patients from four Latin American countries and Spain. Feasibility, acceptability, scaling assumptions, reliability, precision, and construct validity were tested. The study included 324 patients, with age (mean±s.d.) 66.67±10.68 years. None of the EC-PC items had missing values and all acceptability parameters fulfilled the standard criteria. Around two-third of the items (61.54%) met scaling assumptions standards. Concerning internal consistency, Cronbach's alpha values were 0.68-0.88; item-total correlation was >0.30, except for two items; item homogeneity index was >0.30, and inter-item correlation values 0.14-0.76. Intraclass correlation coefficient for EC-PC stability was 0.76 and standard error of measurement (s.e.m.) for precision was 8.60 (for a EC-PC s.d.=18.57). EC-PC presented strong correlation with social support (
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.