ArticleJournal of multidisciplinary healthcare2017
Lived experiences of Iranian parents of beta-thalassemia children.
Article in Journal of multidisciplinary healthcare, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
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Who cites it
13 citing papers in PubMed, 35 citations in OpenAlex.
- Assessment of health-related quality of life in transfusion dependent beta thalassemia.Scientific reports · 2025Article
- Factors contributing to anxiety in adolescents surviving thalassemia major in Indonesia.BMC pediatrics · 2025Article
- Experiences of family caregivers of children living with thalassaemia-major in Karachi: a phenomenological study.BMJ public health · 2024Article
- Psychiatric disorders and caregiver burden in children with transfusion dependent β-thalassaemia and their caregivers.World journal of clinical pediatrics · 2023Article
- Article
- Lived Experiences of the Patients with COVID-19: A Hermeneutic Phenomenology.Journal of caring sciences · 2023Article
- Nurses' experiences of psychosocial care needs of children with thalassaemia and their families in Jordan: A phenomenological study.Nursing open · 2022Article
- The psychosocial challenges of mothers of children with thalassemia: A qualitative study.Journal of education and health promotion · 2022Article
- A Qualitative Study Exploring the Experiences of Mothers Caring for Their Children with Thalassemia in Iran.Ethiopian journal of health sciences · 2021Article
- Experience of Uncertainty in Patients with Thalassemia Major: A Qualitative Study.International journal of hematology-oncology and stem cell research · 2020Article
- Care-Related Quality of Life of Caregivers of Beta-Thalassemia Major Children: An Epidemiological Study in Eastern India.Journal of epidemiology and global health · 2020Observational
- Managing the need to tell: Triggers and strategic disclosure of thalassemia major in Singapore.American journal of medical genetics. Part A · 2019Article
- Family planning practices in couples with children affected by β-thalassemia major and its relationship with their education: An epidemiological study.Journal of education and health promotion · 2019Article
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionThalassemia is a chronic blood disease, which imposes adverse effects on patients and their families. Parents of such patients, given that they had the thalassemia trait, hold themselves responsible for their children's disease in addition to other difficulties, bear the burden of guilt and hopelessness and worry about the health and future of their children. This study aimed to explore the lived experiences of parents of children with thalassemia.
methodsThe present research was conducted using a descriptive phenomenological approach. A purposive sampling was carried out until data saturation. Participants included 15 parents of children with thalassemia who were referred to the Thalassemia Center of Zabol to perform therapeutic procedures for their child in 2016.
resultsExtracted interviews were analyzed employing Colaizzi's method, and four main themes were obtained, including "Gray marriage consanguinity", "Burdened with increased number of thalassemia children", "Socio-familial worries" and "Inexpressible wishes for having an ideal society".
conclusionThe results revealed that parents of children with thalassemia experience a wide range of problems in different aspects, such as physical, emotional, mental, social, economic and familial dimensions. Their experiences are valuable and can help in achieving a better understanding of their problems, which in turn can enable the members of the treatment team to play a more active role and the society to have a better understanding of this disease.
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