ArticleHealth expectations : an international journal of public participation in health care and health policy2017
Accessing support and empowerment online: The experiences of individuals with diabetes.
Article in Health expectations : an international journal of public participation in health care and health policy, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 2 of them syntheses that pooled it.
What it found
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Who cites it
27 citing papers in PubMed, 2 syntheses or guidelines pooled it, 55 citations in OpenAlex.
- Online Communities as a Driver for Patient Empowerment: Systematic Review.Journal of medical Internet research · 2021Pooled it
- Methods and Evaluation Criteria for Apps and Digital Interventions for Diabetes Self-Management: Systematic Review.Journal of medical Internet research · 2020Pooled it
- Navigating Diabetes Management in the Digital Era: Scoping Review of Online Health Information-Seeking Behavior.Journal of medical Internet research · 2026Article
- Exploring the Quality of TikTok-Based Diabetes Self-Management Education in English and Spanish: A Digital Health Study.The science of diabetes self-management and care · 2026Article
- Coproducing an Online Platform for People With Long-Term Physical Health Conditions: Development and Usability Study.Journal of medical Internet research · 2026Article
- An Evaluation of Digital Health Tools to Support Multidisciplinary Teams in Managing Patients with Type 2 Diabetes.Journal of multidisciplinary healthcare · 2026Review
- A mixed studies systematic review on the health and wellbeing effects, and underlying mechanisms, of online support groups for chronic conditions.Communications psychology · 2025Article
- Exploring the Needs and Preferences of Users and Parents to Design a Mobile App to Deliver Mental Health Peer Support to Adolescents With Type 1 Diabetes: Qualitative Study.JMIR diabetes · 2025Article
- Service Users' Experiences of a Nationwide Digital Type 2 Diabetes Self-Management Intervention (Healthy Living): Qualitative Interview Study.JMIR diabetes · 2024Article
- Could Online Education Replace Face-to-Face Education in Diabetes? A Systematic Review.Diabetes therapy : research, treatment and education of diabetes and related disorders · 2024Review
- Experiences of online group support for engaging and supporting participants in the National Health Service Digital Diabetes Prevention Programme: A qualitative interview study.Journal of health services research & policy · 2024Article
- 'It's like a never-ending diabetes youth camp': Co-designing a digital social network for young people with type 1 diabetes.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Barriers and Strategies for Type 1 Diabetes Management Among Emerging Adults: A Qualitative Study.Clinical medicine insights. Endocrinology and diabetes · 2022Article
- Defining an enabling environment for those with chronic disease: an integrative review.BMC nursing · 2021Article
- Information Patients With Melanoma Spontaneously Report About Health-Related Quality of Life on Web-Based Forums: Case Study.Journal of medical Internet research · 2021Article
- Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of Children With Congenital Anomalies: Development Study.JMIR pediatrics and parenting · 2021Article
- Here for You: A Review of Social Support Research in Young Adults With Diabetes.Diabetes spectrum : a publication of the American Diabetes Association · 2021Article
- Web-Based Peer Support Interventions for Adults Living With Chronic Conditions: Scoping Review.JMIR rehabilitation and assistive technologies · 2021Article
- Qualitative Content Analysis of Type 1 Diabetes Caregiver Blogs and Correlations With Caregiver Challenges and Successes.Journal of patient experience · 2020Article
- The work and relatedness of ties mediated online in supporting long-term condition self-management.Sociology of health & illness · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
contextThe use of the internet for health information by those with long-term conditions is growing. It has been argued that this represents a form of empowerment by patients, as it enables them to control the content and flow of the information available to them. To explore this, the use of online discussion groups by those with diabetes was examined.
methodSemi-structured interviews were conducted with 21 participants with type 1 and 2 diabetes and analysed using thematic analysis. Participants were recruited via online and offline routes, namely discussion boards, newsletters, and research networks related to diabetes.
resultsBy drawing on the advice, information, and support shared online, participants were empowered to position themselves as active participants in their own health care and to further engage with health-care professionals.
conclusionThe findings indicate that forums can play a valuable role in aiding and motivating individuals in the daily management diabetes and highlight how this support is used to complement formal health services. However, more work needs to be carried out to determine to explore when and under what circumstances online support may be particularly beneficial to those with long-term conditions.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.