ArticleBMJ open2017
Barriers and facilitators to adherence to secondary stroke prevention medications after stroke: analysis of survivors and caregivers views from an online stroke forum.
Article in BMJ open, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 1 of them a synthesis that pooled it.
What it found
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Who cites it
32 citing papers in PubMed, 1 synthesis or guideline pooled it.
- When People With Chronic Conditions Turn to Peers on Social Media to Obtain and Share Information: Systematic Review of the Implications for Relationships With Health Care Professionals.Journal of medical Internet research · 2023Pooled it
- The Post-Stroke Checklist: longitudinal use in routine clinical practice during first year after stroke.BMC cardiovascular disorders · 2024Trial
- Trial
- Barriers and Facilitators to Treatment Adherence in Patients with Peripheral Artery Disease: A Qualitative Study of Patients with PAD, Relatives and Healthcare Professionals.Patient preference and adherence · 2026Article
- Beyond the Clinic: How Stroke Survivors Navigate Secondary Prevention Through Situated Agency.Health services insights · 2026Article
- Distress disclosure and health behaviours in patients with stroke: a theory-informed serial mediation model of social support, self-efficacy, and self-management.Frontiers in neurology · 2026Article
- Development and psychometric evaluation of the knowledge, attitudes, and practices toward complementary and alternative medicine in stroke.Journal of pharmaceutical policy and practice · 2026Article
- What Is Shared in an Online Peer-Support Group Run by Stroke Survivors? An Exploratory Study With a Participatory Approach.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- The patients awareness and medication adherence among high-risk stroke patients admitted in a tertiary level hospital in Qatar: A cross-sectional study.Qatar medical journal · 2025Article
- A Systematic Review Uncovering Modifiable Influences on Statin Adherence.Patient preference and adherence · 2025Review
- Factors Influencing Recovery From Pediatric Stroke Based on Discussions From a UK-Based Online Stroke Community: Qualitative Thematic Study.Journal of medical Internet research · 2024Article
- Cognition and influencing factors of secondary prevention in patients with ischemic stroke 1 year after discharge in Southwest China: a cross-sectional survey.Frontiers in neurology · 2024Article
- Romanian registry for interventional treatment in acute stroke: a hope for secondary prevention through medication adherence improvement.Journal of medicine and life · 2023Article
- Article
- A qualitative exploration of internet forum discussions surrounding female sexual function for individuals with Sjögren's syndrome.PloS one · 2023Article
- The impact of medication belief on adherence to infliximab in patients with Crohn's disease.Frontiers in pharmacology · 2023Article
- Patient-Reported Reasons for Switching or Discontinuing Statin Therapy: A Mixed Methods Study Using Social Media.Drug safety · 2022Article
- Patient and Provider Perspectives on Medication Non-adherence Among Patients with Depression and/or Diabetes in Diverse Community Settings - A Qualitative Analysis.Patient preference and adherence · 2022Article
- Medication adherence early after stroke: using the Perceptions and Practicalities Framework to explore stroke survivors', informal carers' and nurses' experiences of barriers and solutions.Journal of research in nursing : JRN · 2021Article
- Commentary: Medication adherence early after stroke: using the Perceptions and Practicalities Framework to explore stroke survivors', informal carers' and nurses' experiences of barriers and solutions.Journal of research in nursing : JRN · 2021Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo identify barriers and facilitators of medication adherence in patients with stroke along with their caregivers.
designQualitative thematic analysis of posts about secondary prevention medications, informed by Perceptions and Practicalities Approach.
settingPosts written by the UK stroke survivors and their family members taking part in the online forum of the Stroke Association, between 2004 and 2011.
participants84 participants: 49 stroke survivors, 33 caregivers, 2 not stated, identified using the keywords 'taking medication', 'pills', 'size', 'side-effects', 'routine', 'blister' as well as secondary prevention medication terms.
resultsPerceptions reducing the motivation to adhere included dealing with medication side effects, questioning doctors' prescribing practices and negative publicity about medications, especially in regard to statins. Caregivers faced difficulties with ensuring medications were taken while respecting the patient's decisions not to take tablets. They struggled in their role as advocates of patient's needs with healthcare professionals. Not experiencing side effects, attributing importance to medications, positive personal experiences of taking tablets and obtaining modification of treatment to manage side effects were facilitators of adherence. Key practical barriers included difficulties with swallowing tablets, dealing with the burden of treatment and drug cost. Using medication storage devices, following routines and getting help with medications from caregivers were important facilitators of adherence.
conclusionsAn online stroke forum is a novel and valuable resource to investigate use of secondary prevention medications. Analysis of this forum highlighted significant barriers and facilitators of medication adherence faced by stroke survivors and their caregivers. Addressing perceptual and practical barriers highlighted here can inform the development of future interventions aimed at improving adherence to secondary prevention medication after stroke.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.