ArticleInteractive journal of medical research2017
Health-Related Coping and Social Interaction in People with Multiple Sclerosis Supported by a Social Network: Pilot Study With a New Methodological Approach.
Article in Interactive journal of medical research, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 1 synthesis or guideline pooled it, 46 citations in OpenAlex.
- Pooled it
- Evaluating the Knowledge and Information-Seeking Behaviors of People Living With Multiple Sclerosis: Cross-Sectional Questionnaire Study.Journal of medical Internet research · 2025Article
- Identifying the Barriers to Acceptance of Blockchain-Based Patient-Centric Data Management Systems in Healthcare.Healthcare (Basel, Switzerland) · 2024Article
- Article
- User concerns regarding information sharing on social networking sites: The user's perspective in the context of national culture.PloS one · 2022Article
- Information-Seeking Strategies of People with Multiple Sclerosis in Spain: The INFOSEEK-MS Study.Patient preference and adherence · 2022Article
- COVID-19 pandemic and mental distress in multiple sclerosis: Implications for clinical management.European journal of neurology · 2021Article
- Developing a Digital Solution for Remote Assessment in Multiple Sclerosis: From Concept to Software as a Medical Device.Brain sciences · 2021Review
- Public Engagement and Neurology: An Update.Brain sciences · 2021Review
- Assessing Lifestyle Behaviours of People Living with Neurological Conditions: A Panoramic View of Community Dwelling Australians from 2007-2018.Journal of personalized medicine · 2021Article
- Social networks and infectious diseases prevention behavior: A cross-sectional study in people aged 40 years and older.PloS one · 2021Article
- The impact of social media use on depression in multiple sclerosis patients.Acta neurologica Belgica · 2020Article
- The Interactive Web-Based Program MSmonitor for Self-Management and Multidisciplinary Care in Persons With Multiple Sclerosis: Quasi-Experimental Study of Short-Term Effects on Patient Empowerment.Journal of medical Internet research · 2020Article
- Factors interfering with parenthood decision-making in an Italian sample of people with multiple sclerosis: an exploratory online survey.Journal of neurology · 2019Article
- Internet Usage by Polish Patients With Multiple Sclerosis: A Multicenter Questionnaire Study.Interactive journal of medical research · 2019Article
- Acceptance of Mobile Health Apps for Disease Management Among People With Multiple Sclerosis: Web-Based Survey Study.JMIR formative research · 2018Article
- Neurology and the Internet: a review.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2018Review
- Perspectives from the Patient and the Healthcare Professional in Multiple Sclerosis: Social Media and Patient Education.Neurology and therapy · 2018Article
- Concept analysis of coping with multiple sclerosis.International journal of nursing sciences · 2018Article
- Social Media and Multiple Sclerosis in the Posttruth Age.Interactive journal of medical research · 2017Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
13 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundSocial media are a vital link for people with health concerns who find in Web communities a valid and comforting source for information exchange, debate, and knowledge enrichment. This aspect is important for people affected by chronic diseases like multiple sclerosis (MS), who are very well informed about the disease but are vulnerable to hopes of being cured or saved by therapies whose efficacy is not always scientifically proven. To improve health-related coping and social interaction for people with MS, we created an MS social network (SMsocialnetwork.com) with a medical team constantly online to intervene promptly when false or inappropriate medical information are shared.
objectiveThe goal of this study was to assess the impact of SMsocialnetwork.com on the health-related coping and social interaction of people with MS by analyzing areas of interest through a Web-based survey.
methodsReferring to previous marketing studies analyzing the online platform's role in targeted health care, we conducted a 39-item Web-based survey. We then performed a construct validation procedure using a factorial analysis, gathering together like items of the survey related to different areas of interest such as utility, proximity, sharing, interaction, solving uncertainty, suggestion attitude, and exploration.
resultsWe collected 130 Web-based surveys. The areas of interest analysis demonstrated that the users positively evaluated SMsocialnetwork.com to obtain information, approach and solve problems, and to make decisions (utility: median 4.2); improve feeling of closeness (proximity: median 5); catalyze relationships and text general personal opinions (sharing: median 5.6); get in touch with other users to receive innovative, effective, and practical solutions (interaction, solving uncertainty, and suggestion attitude medians were respectively: 4.1, 3, and 3); and share information about innovative therapeutic approaches and treatment options (suggestion attitude: median: 3.3).
conclusionsSMsocialnetwork.com was perceived by users to be a useful tool to support health-related coping and social interaction, and may suggest a new kind of therapeutic alliance between physicians and people with MS.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.