ArticleJournal of medical Internet research2017
What Patients Value About Reading Visit Notes: A Qualitative Inquiry of Patient Experiences With Their Health Information.
Article in Journal of medical Internet research, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 47 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
47 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Do patient engagement interventions work for all patients? A systematic review and realist synthesis of interventions to enhance patient safety.Health expectations : an international journal of public participation in health care and health policy · 2021Pooled it
- Using Electronic Health Record Portals to Improve Patient Engagement: Research Priorities and Best Practices.Annals of internal medicine · 2020Pooled it
- An Evaluation of AI-Generated Clinical Notes in the OpenNotes Era: A Thematic Analysis of Clinician Discourse.Journal of evaluation in clinical practice · 2026Article
- The Use of Biased Language in the Care of Seriously Ill Children: A Pilot Study.The American journal of hospice & palliative care · 2026Article
- Understanding Patient-Reported Offenses in Electronic Health Records: Cross-Sectional Mixed Methods Survey.Journal of medical Internet research · 2026Article
- Which Patients With Cancer Access Their Clinical Notes? A Disparities Analysis.JCO clinical cancer informatics · 2025Article
- Changes in Documentation After Implementing Open Notes in Mental Health Care: Pre-Post Mixed Methods Study.Journal of medical Internet research · 2025Article
- Charting Diagnostic Safety: Exploring Patient-Provider Discordance in Medical Record Documentation.Journal of general internal medicine · 2025Article
- Guidelines for Patient-Centered Documentation in the Era of Open Notes: Qualitative Study.JMIR medical education · 2025Article
- Relevant determinants of Dutch patients' informed decision-making and use of online access to medical records.Health promotion international · 2025Article
- The Effect of Using a Client-Accessible Health Record on Perceived Quality of Care: Interview Study Among Parents and Adolescents.Journal of participatory medicine · 2024Article
- Partnering with patients and families living with chronic conditions to coproduce diagnostic safety through OurDX: a previsit online engagement tool.Journal of the American Medical Informatics Association : JAMIA · 2023Article
- A Patient-Centered Approach to Writing Ambulatory Visit Notes in the Cures Act Era.Applied clinical informatics · 2023Article
- [Patient's Clinical User Experience in Gastroenterology].The Korean journal of gastroenterology = Taehan Sohwagi Hakhoe chi · 2022Review
- Tablet distribution to veterans: an opportunity to increase patient portal adoption and use.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Patient Identification of Diagnostic Safety Blindspots and Participation in "Good Catches" Through Shared Visit Notes.The Milbank quarterly · 2022Article
- Association Between Patient Portal Use and Perceived Patient-Centered Communication Among Adults With Cancer: Cross-sectional Survey Study.JMIR cancer · 2022Article
- Patients' Willingness and Ability to Identify and Respond to Errors in Their Personal Health Records: Mixed Methods Analysis of Cross-sectional Survey Data.Journal of medical Internet research · 2022Article
- Patients' Experiences of Web-Based Access to Electronic Health Records in Finland: Cross-sectional Survey.Journal of medical Internet research · 2022Article
- OpenNotes and Patient Safety: a Perilous Voyage into Uncharted Waters.Journal of general internal medicine · 2022Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatients are increasingly asking for their health data. Yet, little is known about what motivates patients to engage with the electronic health record (EHR). Furthermore, quality-focused mechanisms for patients to comment about their records are lacking.
objectiveWe aimed to learn more about patient experiences with reading and providing feedback on their visit notes.
methodsWe developed a patient feedback tool linked to OpenNotes as part of a pilot quality improvement initiative focused on patient engagement. Patients who had appointments with members of 2 primary care teams piloting the program between August 2014-2015 were eligible to participate. We asked patients what they liked about reading notes and about using a feedback tool and analyzed all patient reports submitted during the pilot period. Two researchers coded the qualitative responses (κ=.74).
resultsPatients and care partners submitted 260 reports. Among these, 98.5% (256/260) of reports indicated that the reporting tool was valuable, and 68.8% (179/260) highlighted what patients liked about reading notes and the OpenNotes patient reporting tool process. We identified 4 themes describing what patients value about note content: confirm and remember next steps, quicker access and results, positive emotions, and sharing information with care partners; and 4 themes about both patients' use of notes and the feedback tool: accuracy and correcting mistakes, partnership and engagement, bidirectional communication and enhanced education, and importance of feedback.
conclusionsPatients and care partners who read notes and submitted feedback reported greater engagement and the desire to help clinicians improve note accuracy. Aspects of what patients like about using both notes as well as a feedback tool highlight personal, relational, and safety benefits. Future efforts to engage patients through the EHR may be guided by what patients value, offering opportunities to strengthen care partnerships between patients and clinicians.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.