Evidence map›Paper›PMID 28706945›Full record

ArticleBioMed research international2017

Measuring Family Members' Satisfaction with End-of-Life Care in Long-Term Care: Adaptation of the CANHELP Lite Questionnaire.

Shevaun Nadin, Mohammed Ali Miandad, Mary Lou Kelley, Jill Marcella, Daren K Heyland

Abstract read
In one paragraph

Article in BioMed research international, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
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  5. Article
  6. Communicating Health Information at the End of Life: The Caregivers' Perspectives.International journal of environmental research and public health · 2019
    Article
  7. Article
  8. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Shevaun NadinCentre for Education and Research on Aging and Health and Department of Health Sciences, Lakehead University, 955 Oliver Rd., Thunder Bay, ON, Canada P7B 5E1.ORCID 0000-0001-7962-1931
Mohammed Ali MiandadCentre for Education and Research on Aging and Health and Department of Health Sciences, Lakehead University, 955 Oliver Rd., Thunder Bay, ON, Canada P7B 5E1.
Mary Lou KelleySchool of Social Work and Centre for Education and Research on Aging and Health, Lakehead University, 955 Oliver Rd., Thunder Bay, ON, Canada P7B 5E1.ORCID 0000-0002-5873-5208
Jill MarcellaNorth West LHIN Regional Palliative Care Program with St. Joseph's Care Group, 35 N. Algoma St., Thunder Bay, ON, Canada P7B 5G7.
Daren K HeylandDepartment of Critical Care Medicine, Queen's University, Watkins 5, Kingston General Hospital, Kingston, ON, Canada K7L 2V7.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

rationaleImproving end-of-life care (EOLC) in long-term care (LTC) homes requires quality measurement tools that assess families' satisfaction with care. This research adapted and pilot-tested an EOLC satisfaction measure (Canadian Health Care Evaluation Project (CANHELP) Lite Questionnaire) for use in LTC to measure families' perceptions of the EOLC experience and to be self-administered. METHODS AND

resultsPHASE 2: The revised questionnaire was administered to 118 LTC family members and cognitive interviews were conducted. Further modifications were made including reformatting to be self-administered. PHASE 3: The new instrument was pilot-tested with 134 family members. Importance ratings indicated good content and face validity. Cronbach's alpha coefficients (range: .88-.94) indicated internal consistency.

conclusionThis research adapted and pilot-tested the CANHELP for use in LTC. This paper introduces the new, valid, internally consistent, self-administered tool (CANHELP Lite Family Caregiver LTC) that can be used to measure families' perceptions of and satisfaction with EOLC. Future research should further validate the instrument and test its usefulness for quality improvement and care planning.

Indexed as

Hospice CareTerminal CareAgedAged, 80 and overCanadaCaregiversFamilyFemaleHumansLong-Term CareMalePersonal SatisfactionQuality of LifeSurveys and Questionnaires

Identifiers

PMID28706945
PMCPMC5494554

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.