ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2017
Durable usage of patient-reported outcome measures in clinical practice to monitor health-related quality of life in head and neck cancer patients.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
32 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Facilitators and barriers to implementing electronic patient-reported outcome and experience measures in a health care setting: a systematic review.Journal of patient-reported outcomes · 2023Pooled it
- Pooled it
- Needs assessment in patients surgically treated for head and neck cancer-a randomized controlled trial.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Trial
- Cost-utility of an eHealth application 'Oncokompas' that supports cancer survivors in self-management: results of a randomised controlled trial.Journal of cancer survivorship : research and practice · 2021Trial
- Healthcare Practitioners' Perceptions of Quality-of-Life Tools in Head and Neck Surgical Oncology: A Qualitative Descriptive Content Analysis.Laryngoscope investigative otolaryngology · 2026Article
- Interventions influencing patient-reported outcomes (PROs) response rates in cancer: a scoping review.Journal of cancer survivorship : research and practice · 2025Review
- Article
- Moving beyond barriers: a mixed-method study to develop evidence-based strategies to improve implementation of PROMs in clinical oncology care.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Facilitators and barriers to implementing patient-reported outcomes in clinical oncology practice: a systematic review based on the consolidated framework for implementation research.Implementation science communications · 2024Review
- Patient perceptions of an electronic-health-record-based rheumatoid arthritis outcomes dashboard: a mixed-methods study.BMC medical informatics and decision making · 2024Article
- Review
- Implementing a Clinical Pathway for Needs Assessment and Supportive Care Interventions.JCO oncology practice · 2024Article
- First Phase Development of a Patient-reported Outcome Measure for Midface Oncology.Plastic and reconstructive surgery. Global open · 2024Article
- A pre-implementation examination of barriers and facilitators of an electronic prospective surveillance model for cancer rehabilitation: a qualitative study.BMC health services research · 2024Article
- Assessing Patient Readiness for an Electronic Patient-Reported Outcome-Based Symptom Management Intervention in a Multisite Study.JCO oncology practice · 2024Article
- Asking questions that are "close to the bone": integrating thematic analysis and natural language processing to explore the experiences of people with traumatic brain injuries engaging with patient-reported outcome measures.Frontiers in digital health · 2024Article
- Feasibility of implementing patient-reported outcome measures into routine breast cancer care delivery using a novel collection and reporting platform.JAMIA open · 2023Article
- Clinical Integration of Digital Patient-Reported Outcome Measures in Primary Health Care for Chronic Disease Management: Protocol for a Systematic Review.JMIR research protocols · 2023Article
- Perceived Barriers and Facilitators in Using Patient-Reported Outcome Systems for Cancer Care: Systematic Mapping Study.JMIR cancer · 2023Review
- Implementation of electronic prospective surveillance models in cancer care: a scoping review.Implementation science : IS · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeTo investigate the long-term follow-up (5 years) of implementing patient-reported outcome measures (PROMs) in clinical practice to monitor health-related quality of life (HRQOL) in head and neck cancer (HNC) patients.
methodsA mixed method design was used. The usage rate of OncoQuest (a touch screen computer system to monitor HRQOL) and the subsequent nurse consultation was calculated among HNC patients who visited the outpatient clinic for regular follow-up, as well as differences between ever users and never users (sociodemographic and clinical characteristics). The content of the nurse consultation was investigated. Reasons for not using (barriers) or using (facilitators) OncoQuest and the nurse consultation were explored from the perspective of HNC patients, and of head and neck surgeons.
resultsUsage rate of OncoQuest was 67% and of the nurse consultation 79%. Usage of OncoQuest was significantly related to tumor subsite and tumor stage. Topics most frequently (>40%) discussed during the nurse consultation were global quality of life (97%), head and neck cancer related symptoms (82%), other physical symptoms such as pain (61%), and psychological problems such as anxiety (44%). Several barriers and facilitators to implement PROMs in clinical practice were reported by both patients and head and neck surgeons.
conclusionUsage of PROMs in clinical practice and a nurse consultation is durable, even 5 years after the introduction. This study contributes to better insight into long-term follow-up of implementation, thereby guiding future research and projects that aim to implement PROMs in clinical practice to monitor HRQOL among (head and neck) cancer patients.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.