ArticleJournal of empirical research on human research ethics : JERHRE2017
Parental Perceptions About Informed Consent/Assent in Pediatric Research in Jordan.
Article in Journal of empirical research on human research ethics : JERHRE, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed.
- Article
- Motivators and barriers towards clinical research participation: A population-based survey from an Arab MENA country.PloS one · 2022Article
- Exploring Knowledge and Perceptions of Faculty Members about Authorship: A Study from Jordan.European online journal of natural and social sciences · 2022Article
- The understanding of research ethics at health sciences schools in Jordan: a cross-sectional study.BMC medical education · 2020Article
- Biomedical Data Sharing Among Researchers: A Study from Jordan.Journal of multidisciplinary healthcare · 2020Article
- Perceptions Towards Medical Research Participation: A Study from Jordan.Journal of multidisciplinary healthcare · 2020Article
- Bioethical reflexivity and requirements of valid consent: conceptual tools.BMC medical ethics · 2019Article
- How should assent to research be sought in low income settings? Perspectives from parents and children in Southern Malawi.BMC medical ethics · 2019Article
- Cultural considerations for informed consent in paediatric research in low/middle-income countries: a scoping review.BMJ paediatrics open · 2018Article
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
The informed consent/assent process during enrollment in pediatric research is integral to protecting children from possible harm. Here we explored parents' perceptions about the informed consent/assent process in Jordan. Therefore, focus group interviews were conducted that focused on the importance of consent/assent, the quality of the information provided during consent process, and the parents' perceptions toward written/verbal informed consent. Content thematic analysis approach was adopted in the transcription and translation processes of the interviews. The majority of parents have an ethically acceptable understanding of many of the aspects related to consent/assent; however, some views were not consistent with the proper conduct of research. For example, some parents believed that informed consent is not required for questionnaire studies. Discrepancies were also noted regarding the appropriate age of a child's assent. Some parents would force their child to participate. Thus, the development of Jordanian, culturally sensitive pediatric research guidelines is required.
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Registered trials
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