ArticleBMC palliative care2017
The provision of generalist and specialist palliative care for patients with non-malignant respiratory disease in the North and Republic of Ireland: a qualitative study.
Article in BMC palliative care, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 16 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed, 2 syntheses or guidelines pooled it, 26 citations in OpenAlex.
- The roles and experiences of informal caregivers in non-malignant respiratory disease at the end of life: A thematic synthesis of qualitative studies.Palliative & supportive care · 2026Pooled it
- Hospice care access inequalities: a systematic review and narrative synthesis.BMJ supportive & palliative care · 2022Pooled it
- What Helps or Hinders End-of-Life Care in Adult Intensive Care Units in Saudi Arabia? A Mixed-Methods Study Protocol.Healthcare (Basel, Switzerland) · 2024Article
- Interstitial lung disease: a review of classification, etiology, epidemiology, clinical diagnosis, pharmacological and non-pharmacological treatment.Frontiers in medicine · 2024Review
- Palliative care and end of life management in patients with idiopathic pulmonary fibrosis.Multidisciplinary respiratory medicine · 2023Article
- Co-Design of an Evidenced Informed Service Model of Integrated Palliative Care for Persons Living with Severe Mental Illness: A Qualitative Exploratory Study.Healthcare (Basel, Switzerland) · 2021Article
- Knowledge of end-of-life wishes by physicians and family caregivers in cancer patients.BMC palliative care · 2021Article
- Palliative care for people with non-malignant respiratory disease and their carers: a review of the current evidence.Journal of research in nursing : JRN · 2019Article
- Palliative care for patients with motor neurone disease and their bereaved carers: a qualitative study.BMC palliative care · 2019Article
- Healthcare professionals' views of palliative care for American war veterans with non-malignant respiratory disease living in a rural area: a qualitative study.BMC palliative care · 2019Article
- Population-based palliative care planning in Ireland: how many people will live and die with serious illness to 2046?HRB open research · 2019Article
- First year experiences with a palliative out-patients structure for patients with COPD: a qualitative study of health professionals' expectations and experiences.BMC palliative care · 2018Article
- Improving implementation of psychological interventions to older adult patients with cancer: Convening older adults, caregivers, providers, researchers.Journal of geriatric oncology · 2018Article
- End-of-life care in UK care homes: a systematic review of the literature.Journal of research in nursing : JRN · 2018Article
- The potential of palliative care for patients with respiratory diseases.Breathe (Sheffield, England) · 2017Article
- Provision of Palliative Care in Patients with COPD: A Survey Among Pulmonologists and General Practitioners.International journal of chronic obstructive pulmonary diseaseArticle
Corrections and comments
- Erratum issued
Authors and funding
5 authors at 4 institutions in 3 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPrevious research and key guidelines have suggested potential models of palliative care for patients with COPD and interstitial lung disease. However, these recommendations are often not effectively implemented in clinical practice and are void of guidance regarding palliative care for patients with bronchiectasis, another form of non-malignant respiratory disease. The aim of this research was to explore generalist and specialist palliative care service provision for people with non-malignant respiratory disease in the North and Republic of Ireland.
methodsQualitative study involving a convenience sample of 17 bereaved carers and 18 healthcare professionals recruited from 2 rural and 2 urban sites on the Island of Ireland. Data collection consisted of semi-structured interviews with carers of patients with COPD, interstitial lung disease or bronchiectasis who had died 3-18 months previously; and 4 focus groups with healthcare professionals. Data analysed using thematic analysis.
resultsFindings highlighted the lack of a clear model of holistic care delivery for patients with non-malignant respiratory disease and illuminated the varying levels of palliative care provision this client group experienced. Additionally, ambiguity amongst healthcare professionals regarding prognostication illuminated the importance of the provision of palliative care being based on patient need, not prognosis. This research developed a potential model of palliative care which may help healthcare professionals introduce palliative care, and specialist respiratory care, early in the disease trajectory of non-malignant respiratory disease, whilst also encouraging the involvement of specialist palliative care for complex symptom management.
conclusionThis research provides an important insight into a potential model of palliative care for people with non-malignant respiratory disease, inclusive of bronchiectasis. However, the feasibility of integrating this model into clinical practice requires further exploration.
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