Evidence map›Paper›PMID 28690390›Full record

ArticleActa myologica : myopathies and cardiomyopathies : official journal of the Mediterranean Society of Myology2017

Integrated care of muscular dystrophies in Italy. Part 1. Pharmacological treatment and rehabilitative interventions.

Luisa Politano, Marianna Scutifero, Melania Patalano, Alessandra Sagliocchi, Antonella Zaccaro, Federica Civati, Erika Brighina, Gianluca Vita, Sonia Messina, Maria Sframeli and 19 more

Erratum issuedOpen access · greenAbstract read
PubMed Full text at PMC
In one paragraph

Article in Acta myologica : myopathies and cardiomyopathies : official journal of the Mediterranean Society of Myology, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.2field-weighted citation impact, top 42% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 6 citations in OpenAlex.

  1. Article
  2. Integrated care of muscular dystrophies in Italy. Part 2. Psychological treatments, social and welfare support, and financial costs.Acta myologica : myopathies and cardiomyopathies : official journal of the Mediterranean Society of Myology · 2017
    Review
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

29 authors at 9 institutions in 1 country.

Luisa PolitanoCardiomyology and Medical Genetics, Department of Experimental Medicine, Campania University "Luigi Vanvitelli" (former denomination: Second University of Naples), Italy.
Marianna ScutiferoCardiomyology and Medical Genetics, Department of Experimental Medicine, Campania University "Luigi Vanvitelli" (former denomination: Second University of Naples), Italy.
Melania PatalanoDepartment of Psychology, Campania University "Luigi Vanvitelli", Italy.
Alessandra SagliocchiDepartment of Psychology, Campania University "Luigi Vanvitelli", Italy.
Antonella ZaccaroDepartment of Psychology, Campania University "Luigi Vanvitelli", Italy.
Federica CivatiNeuroMuscular Unit, Department of NeuroRehabilitation, IRCCS "E. Medea", Bosisio Parini (LC), Italy.
Erika BrighinaNeuroMuscular Unit, Department of NeuroRehabilitation, IRCCS "E. Medea", Bosisio Parini (LC), Italy.
Gianluca VitaDepartment of Neurosciences, University of Messina.
Sonia MessinaDepartment of Neurosciences, University of Messina.
Maria SframeliDepartment of Neurosciences, University of Messina.
Maria Elena LombardoDepartment of Paediatric Neurology, Catholic University, Rome, Italy.
Roberta ScaliseDepartment of Paediatric Neurology, Catholic University, Rome, Italy.
Giulia ColiaUnit of Neuromuscular and Neurodegenerative Diseases, Bambin Gesù Children's Hospital, Rome, Italy.
Maria CatterucciaUnit of Neuromuscular and Neurodegenerative Diseases, Bambin Gesù Children's Hospital, Rome, Italy.
Angela BerardinelliChild Neuropsychiatry Unit, Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy.
Maria Chiara MottaChild Neuropsychiatry Unit, Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy.
Alessandra GaianiDepartment of Neurosciences, University of Padova, Italy.
Claudio SempliciniDepartment of Neurosciences, University of Padova, Italy.
Luca BelloDepartment of Neurosciences, University of Padova, Italy.
Guja AstreaDevelopmental Neuroscience, IRCCS Stella Maris, Pisa Italy.
Giulia RicciDevelopmental Neuroscience, IRCCS Stella Maris, Pisa Italy.
Maria Grazia D'AngeloNeuroMuscular Unit, Department of NeuroRehabilitation, IRCCS "E. Medea", Bosisio Parini (LC), Italy.
Giuseppe VitaDepartment of Neurosciences, University of Messina.
Marika PaneDepartment of Paediatric Neurology, Catholic University, Rome, Italy.
Adele D'AmicoUnit of Neuromuscular and Neurodegenerative Diseases, Bambin Gesù Children's Hospital, Rome, Italy.
Umberto BalottinChild Neuropsychiatry Unit, Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy.
Corrado AngeliniDepartment of Neurosciences, University of Padova, Italy.
Roberta BattiniDevelopmental Neuroscience, IRCCS Stella Maris, Pisa Italy.
Lorenza MaglianoDepartment of Psychology, Campania University "Luigi Vanvitelli", Italy.
University of Campania "Luigi Vanvitelli" · ITUniversity of Messina · ITUniversity of Padua · ITBambino Gesù Children's Hospital · ITFondazione Stella Maris · ITIRCCS Eugenio Medea · ITUniversità Cattolica del Sacro Cuore · ITUniversity of Pavia · ITUniversity of Campania "Luigi Vanvitelli" · IT

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

This paper describes the pharmacological therapies and rehabilitative interventions received by 502 patients with Muscular Dystrophies, evaluated in relation to patient's socio-demographic and clinical variables, and geographical areas. Data were collected by the MD-Socio-Demographic and Clinical Schedule (MD-SC-CS) and by the Family Problems Questionnaire (FPQ). The most part of the enrolled patients were in drug treatment. The number of the medications increased in relation to patient's age, disability degree and duration of illness and was higher among patients with Duchenne Muscular Dystrophy (DMD) compared with Becker (BMD) or Limb-Girdle Muscular Dystrophies (LGMD). Steroids (deflazacort or prednisone) were the drug most frequently used, followed by cardiologic and bone metabolism drugs. In general, patients using steroids were younger and had a shorter duration of illness; patients using cardiac drugs and dietary supplements were older and had a longer duration of illness. Rehabilitative interventions were provided to about 70% (351/502) of patients, mainly DMD. Of these, physiotherapy was the more frequent treatment (96.6%) and was prevalently performed in rehabilitative centres (about 70% of patients) and at home in only 30%. Hydrokinetic-therapy was practiced by 6.8% of patients. Respiratory rehabilitation was provided to 47.0% of patients (165/351) and assisted mechanical ventilaventilation to 13.1% (46). The amount of rehabilitative interventions increased in relation to the patient's age, level of disability and duration of illness. Compared to Central and Northern Italy, in Southern Italy there was a higher attention to cardiological impairment as shown by a higher number of patients receiving heart drugs. No statistically significant differences concerning the possibility to have access to rehabilitative interventions were noted among the three geographical areas. However, patient living in Southern Italy tend to receive rehabilitation more often at home.

Indexed as

Physical Therapy ModalitiesAdolescentAge FactorsBone Density Conservation AgentsBreathing ExercisesCardiotonic AgentsChildCombined Modality TherapyDietary SupplementsDisability EvaluationFemaleGlucocorticoidsHealth Care SurveysHumansItalyMaleBone Density Conservation AgentsCardiotonic AgentsdeflazacortGlucocorticoidsPrednisonePregnenedionesintegrated caremuscular dystrophiespharmacological treatmentrehabilitative intervention

Identifiers

PMID28690390
PMCPMC5479104
OpenAlexW2792377052

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.