ArticleJournal of community genetics2017
Leveraging community-based participatory research capacity to recruit Pacific Islanders into a genetics study.
Article in Journal of community genetics, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Preterm birth among Pacific Islanders in the United States and the US-affiliated Pacific Islands: A systematic review and meta-analysis.Birth (Berkeley, Calif.) · 2023Pooled it
- Native Hawaiian and Pacific Islander populations in genomic research.NPJ genomic medicine · 2024Review
- Native Hawaiian and Pacific Islanders' Identity and Housing Status: The Impact on Historical Trauma and Perceived Stress.International journal of environmental research and public health · 2024Article
- Global prevalence of preterm birth among Pacific Islanders: A systematic review and meta-analysis.PLOS global public health · 2023Article
- Cytogenetic and epigenetic aberrations in peripheral lymphocytes of northwest Arkansas Marshallese.International journal of radiation biology · 2023Article
- Study protocol for family model diabetes self-management education with Marshallese participants in faith-based organizations.Contemporary clinical trials communications · 2022Article
- Preterm birth among Pacific Islander women and related perinatal outcomes: a scoping review protocol.BMJ open · 2021Article
- Predictors for participation in DNA self-sampling of childhood cancer survivors in Switzerland.BMC medical research methodology · 2021Article
- "Being proactive, not reactive": exploring perceptions of genetic testing among White, Latinx, and Pacific Islander Populations.Journal of community genetics · 2021Article
- Using Community Based Research Frameworks to Develop and Implement a Church-Based Program to Prevent Diabetes and Its Complications for Samoan Communities in South Western Sydney.International journal of environmental research and public health · 2021Article
- Engagement and return of results preferences among a primarily African American genomic sequencing research cohort.American journal of human genetics · 2021Article
- COVID-19 Disparities Among Marshallese Pacific Islanders.Preventing chronic disease · 2021Article
- Eliciting culturally and medically informative family health histories from Marshallese patients living in the United States.Journal of genetic counseling · 2020Article
- A Community-Based Participatory Approach to Promote Healthy Eating Among Marshallese.Hawai'i journal of health & social welfare · 2019Article
- Indigenous Peoples and genomics: Starting a conversation.Journal of genetic counseling · 2019Article
- Using the diffusion of innovations model to guide participant engagement in the genomics era.Journal of genetic counseling · 2019Article
- Best Practices for Community-Engaged Research with Pacific Islander Communities in the US and USAPI: A Scoping Review.Journal of health care for the poor and underserved · 2019Article
- Sistas Taking a Stand for Breast Cancer Research (STAR) Study: A Community-Based Participatory Genetic Research Study to Enhance Participation and Breast Cancer Equity among African American Women in Memphis, TN.International journal of environmental research and public health · 2018Article
- Health Research Participation, Opportunity, and Willingness Among Minority and Rural Communities of Arkansas.Clinical and translational science · 2018Article
- Genuine participation in participant-centred research initiatives: the rhetoric and the potential reality.Journal of community genetics · 2018Article
Corrections and comments
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Authors and funding
12 authors.
Funding
Abstract
Pacific Islanders face many health disparities, including higher rates of cardiovascular disease, cancer, obesity, and diabetes compared to other racial and ethnic groups. Specifically, the Marshallese population suffers disproportionately from type 2 diabetes, with rates 400% higher than the general US population. As part of an ongoing community-based participatory research (CBPR) partnership, 148 participants were recruited for a study examining genetic variants to better understand diabetes. Participants provided a saliva specimen in an Oragene® DNA self-collection kit. Each participant provided approximately 2 mL volume of saliva and was asked qualitative questions about their experience. The study yielded a recruitment rate of 95.5%. Among the 148 persons who participated, 143 (96.6%) agreed to be contacted for future studies; 142 (95.9%) agreed to have their samples used for future IRB-approved studies; and 144 (97.3%) gave permission for the researchers to link information from this study to other studies in which they had participated. Qualitative responses showed that the majority of participants were willing to participate because of their desire to contribute to the health of their community and to understand the genetic influence related to diabetes. This study demonstrates willingness to participate in genetic research among Marshallese living in Arkansas. Willingness was likely enhanced because the feasibility study was part of a larger CBPR effort. This study is important to community stakeholders who have voiced a desire to collaboratively conduct genetic research related to diabetes, perinatal outcomes, and cancer.
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