ArticleJournal of Parkinson's disease2017
A Consensus Set of Outcomes for Parkinson's Disease from the International Consortium for Health Outcomes Measurement.
Article in Journal of Parkinson's disease, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05343962 (Observational Study for the Identification of Relevant Variables Related to Health Status, Disability and Quality in Different Populations, Through the Analysis of Health Determinants and Paremeters Obtained by Means of Patient-reported Outcomes Questionnaires.), which is not on this map. Cited by 33 papers, 6 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Observational Study for the Identification of Relevant Variables Related to Health Status, Disability and Quality in Different Populations, Through the Analysis of Health Determinants and Paremeters Obtained by Means of Patient-reported Outcomes Questionnaires.
Who cites it
33 citing papers in PubMed, 6 syntheses or guidelines pooled it.
- Pooled it
- Physical exercise for people with Parkinson's disease: a systematic review and network meta-analysis.The Cochrane database of systematic reviews · 2024Pooled it
- Physical exercise for people with Parkinson's disease: a systematic review and network meta-analysis.The Cochrane database of systematic reviews · 2023Pooled it
- Systematic review of international Delphi surveys for core outcome set development: representation of international patients.BMJ open · 2020Pooled it
- Physiotherapy in Parkinson's Disease: A Meta-Analysis of Present Treatment Modalities.Neurorehabilitation and neural repair · 2020Pooled it
- Treatment of Dysphagia in Parkinson's Disease: A Systematic Review.International journal of environmental research and public health · 2020Pooled it
- Rehabilitation Gaps and Unmet Needs Across Disability Stages in Patients With Parkinson's Disease: A National Survey.Journal of movement disorders · 2026Article
- Article
- Dynamic Prediction Using Functional Latent Trait Joint Models for Multivariate Longitudinal Outcomes: An Application to Parkinson's Disease.Statistics in medicine · 2025Article
- Minimal Clinically Important Difference of Average Daily Steps Measured Through a Consumer Smartwatch in People With Mild-to-Moderate Parkinson Disease: Cross-Sectional Study.JMIR mHealth and uHealth · 2025Article
- Measuring What Matters in Parkinson's Disease Research and Dysphagia: The Need for Core Outcome Sets.Movement disorders : official journal of the Movement Disorder Society · 2025Article
- Assessment of current patient reported outcome measures for three core outcome domains for single-sided deafness device intervention trials.Journal of patient-reported outcomes · 2025Article
- Article
- Outcome Selection for Research Studies in Movement Disorders.Movement disorders clinical practice · 2024Article
- Development of a Core Outcome Set for Dysphagia Interventions in Parkinson's disease (COS-DIP): study protocol.BMJ open · 2024Article
- Using Patient Blogs on Social Media to Assess the Content Validity of Patient-Reported Outcome Measures: Qualitative Analysis of Patient-Written Blogs.JMIR formative research · 2023Article
- Multifactorial assessment of Parkinson's disease course and outcomes using trajectory modeling in a multiethnic, multisite cohort - extension of the LONG-PD study.Frontiers in aging neuroscience · 2023Article
- Activities of Daily Living Are Improved by Inpatient Multimodal Complex Treatment for PD-a Real-World Cohort Study.Movement disorders clinical practice · 2023Article
- Balancing adaptability and standardisation: insights from 27 routinely implemented ICHOM standard sets.BMC health services research · 2022Article
- Common patient-reported outcomes across ICHOM Standard Sets: the potential contribution of PROMIS®.BMC medical informatics and decision making · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
14 authors.
Funding
Abstract
backgroundParkinson's disease (PD) is a progressive neurodegenerative condition that is expected to double in prevalence due to demographic shifts. Value-based healthcare is a proposed strategy to improve outcomes and decrease costs. To move towards an actual value-based health care system, condition-specific outcomes that are meaningful to patients are essential.
objectivePropose a global consensus standard set of outcome measures for PD.
methodsEstablished methods for outcome measure development were applied, as outlined and used previously by the International Consortium for Health Outcomes Measurement (ICHOM). An international group, representing both patients and experts from the fields of neurology, psychiatry, nursing, and existing outcome measurement efforts, was convened. The group participated in six teleconferences over a six-month period, reviewed existing data and practices, and ultimately proposed a standard set of measures by which patients should be tracked, and how often data should be collected.
resultsThe standard set applies to all cases of idiopathic PD, and includes assessments of motor and non-motor symptoms, ability to work, PD-related health status, and hospital admissions. Baseline demographic and clinical variables are included to enable case mix adjustment.
conclusionsThe Standard Set is now ready for use and pilot testing in the clinical setting. Ultimately, we believe that using the set of outcomes proposed here will allow clinicians and scientists across the world to document, report, and compare PD-related outcomes in a standardized fashion. Such international benchmarks will improve our understanding of the disease course and allow for identification of 'best practices', ultimately leading to better informed treatment decisions.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.