ArticlePediatric cardiology2017
Pediatric Cardiology Provider Attitudes About Palliative Care: A Multicenter Survey Study.
Article in Pediatric cardiology, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers.
What it found
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Who cites it
32 citing papers in PubMed, 76 citations in OpenAlex.
- Enhancing Fetal Cardiac Care: Addressing Unwarranted Variation in Prenatal Congenital Heart Disease Detection and Counseling.Current cardiology reports · 2026Review
- Palliative Care Education in Pediatric Cardiology Fellowships: A Survey of Program Directors.Pediatric cardiology · 2026Article
- How Clinicians Prenatally Discuss Management Options and Outcomes for Congenital Heart Disease.Journal of pain and symptom management · 2026Article
- Associations of Physician Perspectives, Personal Choices, and Counseling for Severe Congenital Heart Defects.Prenatal diagnosis · 2025Article
- What do pediatric transplant physicians think about palliative care? Results from a national survey study.Bone marrow transplantation · 2025Article
- Palliative care for the cardiothoracic transplant recipient.JHLT open · 2025Article
- Pediatric Transplant Surgeons' Perspectives on Palliative Care for Children With Chronic Kidney Disease: A National Cross-Sectional Survey.Pediatric transplantation · 2025Article
- Barriers and facilitators influencing referral and access to palliative care for children and young people with life-limiting and life-threatening conditions: a scoping review of the evidence.Palliative medicine · 2024Article
- Programmatic Palliative Care Consultations in Pediatric Heart Transplant Evaluations.Pediatric cardiology · 2024Article
- Fetal Cardiology Bioethics: An Innovative New Curriculum for Cardiology Trainees.Pediatric cardiology · 2024Review
- Medical and End-of-Life Decision-Making Preferences in Adolescents and Young Adults with Advanced Heart Disease and Their Parents.JAMA network open · 2023Article
- Timing of Pediatric Palliative Care Consults in Hospitalized Patients with Heart Disease.Journal of pediatric intensive care · 2023Article
- Palliative Care Across the Life Span for Children With Heart Disease: A Scientific Statement From the American Heart Association.Circulation. Cardiovascular quality and outcomes · 2023Review
- The Surprise Question as a Trigger for Primary Palliative Care Interventions for Children with Advanced Heart Disease.Pediatric cardiology · 2022Article
- An Automatic Pediatric Palliative Care Consultation for Children Supported on Extracorporeal Membrane Oxygenation: A Survey of Perceived Benefits and Barriers.Journal of palliative medicine · 2022Article
- Assessment of an Instrument to Measure Interdisciplinary Staff Perceptions of Quality of Dying and Death in a Pediatric Cardiac Intensive Care Unit.JAMA network open · 2022Article
- A "Good Death" for Children with Cardiac Disease.Pediatric cardiology · 2022Article
- Circumstances surrounding end-of-life in pediatric patients pre- and post-heart transplant: a report from the Pediatric Heart Transplant Society.Pediatric transplantation · 2022Article
- Palliative care for children with complex cardiac conditions: survey results.Archives of disease in childhood · 2022Article
- State of the science and future research directions in palliative and end-of-life care in paediatric cardiology: a report from the Harvard Radcliffe Accelerator Workshop.Cardiology in the young · 2022Article
Corrections and comments
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Authors and funding
7 authors at 6 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
While availability of palliative care consultation for children with advanced heart disease increases, little is known about cardiologist attitudes towards palliative care. We sought to describe perspectives of cardiologists regarding palliative care and to characterize their perceived competence in palliative care concepts. A cross-sectional survey of pediatric cardiologists and cardiac surgeons from 19 pediatric medical centers was performed. Overall response rate was 31% (183/589). Respondents had a median of 18 years of experience since medical school (range 2-49) and most practiced at academic centers (91%). Sixty-percent of respondents felt that palliative care consultations occur "too late" and the majority (85%) agreed that palliative care consultations are helpful. Barriers to requesting palliative care consultation were most frequently described as "referring to palliative care services too early will undermine parents' hope" (45%) and "concern that parents will think I am giving up on their child" (56%). Only 33% of cardiologists reported feeling "very" or "moderately" competent in prognosticating life expectancy while over 60% felt competent caring for children with heart disease around end of life, and nearly 80% felt competent discussing goals of care and code status. Greater perceived competence was associated with subspecialty (heart failure/intensivist vs. other) (OR 3.6, 95% CI 1.6-8.1, p = 0.003) and didactic training (OR 6.27, 95% CI 1.8-21.8, p = 0.004). These results underscore the need for further training in palliative care skills for pediatric cardiologists. Enhancing palliative care skills among cardiologists and facilitating partnership with subspecialty palliative care teams may improve overall care of children with advanced heart disease.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.