ArticleHealth expectations : an international journal of public participation in health care and health policy2017
"Part of the Team": Mapping the outcomes of training patients for new roles in health research and planning.
Article in Health expectations : an international journal of public participation in health care and health policy, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
31 citing papers in PubMed, 41 citations in OpenAlex.
- Creating shared vision in patient partnered research: a case example of patient engagement from the PAVE project (producing an arthritis value framework with economic evidence: paving the way for rare childhood disease).Research involvement and engagement · 2026Article
- Impact of a Health Research Training Program on Patient and Community Partners, and Researchers: A Qualitative Evaluation.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Seeing the Invisible Resiliency (STIR): Chronic Autoimmune Conditions and Post-Secondary Education Experiences in Young Adulthood.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Attitudes and perceptions regarding knowledge translation and community engagement in medical research: the PERSPECT qualitative study.Health research policy and systems · 2025Article
- From experience to a learning health system: peer-to-peer perspectives and implications for healthcare navigation in Alberta, Canada.Frontiers in health services · 2025Article
- Article
- Key ingredients for successful collaboration in health research: perspectives of patient research partners.Research involvement and engagement · 2024Article
- Measuring the Impact of Patient Engagement in Health Research: An Exploratory Study Using Multiple Survey Tools.Journal of the Canadian Association of Gastroenterology · 2024Article
- Exploring the outcomes of research engagement using the observation method in an online setting.BMJ open · 2023Article
- Ten health policy challenges for the next 10 years.Health affairs scholar · 2023Article
- Roles, outcomes, and enablers within research partnerships: A rapid review of the literature on patient and public involvement and engagement in health research.Research involvement and engagement · 2023Review
- The dynamic nature of patient engagement within a Canadian patient-oriented kidney health research network: Perspectives of researchers and patient partners.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- What are the reasons for unfinished nursing care as perceived by hospitalized patients? Findings from a qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Transitions from pediatric to adult rheumatology care for juvenile idiopathic arthritis: a patient led qualitative study.BMC rheumatology · 2022Article
- Article
- A patient-led, peer-to-peer qualitative study on the psychosocial relationship between young adults with inflammatory bowel disease and food.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Mapping the role of patient and public involvement during the different stages of healthcare innovation: A scoping review.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- 'It's the empathy'-defining a role for peer support among people living with chronic kidney disease: a qualitative study.BMJ open · 2022Article
- Operationalizing a patient engagement plan for health research: Sharing a codesigned planning template from a national clinical trial.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Co-produced capability framework for successful patient and staff partnerships in healthcare quality improvement: results of a scoping review.BMJ quality & safety · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundA patient research internship (Patient and Community Engagement Research program-PaCER) was created to support a provincial commitment by Alberta Health Services' Strategic Clinical Networks
objectiveImplement and test a new research method and training curriculum to build patient capacity for engagement in health through peer-to-peer research.
designProgramme evaluation using Outcome Mapping and the grounded theory method. SETTING AND
participantsTwenty-one patients with various chronic conditions completed one year of training in adapted qualitative research methods, including an internship where they designed and conducted five peer-to-peer inquiries into a range of health experiences.
main outcome measuresOutcomes were continually monitored and evaluated using an Outcome Mapping framework, in combination with grounded theory analysis, based on data from focus groups, observation, documentation review and semi-structured interviews (21 patient researchers, 15 professional collaborators).
resultsKey stakeholders indicated the increased capacity of patients to engage in health-care research and planning, and the introduction and acceptance of new, collaborative roles for patients in health research. The uptake of new patient roles in health-care planning began to impact attitudes and practices.
conclusionsPatient researchers become "part of the team" through cultural and relationship changes that occur in two convergent directions: (i) building the capacity of patients to engage confidently in a dialogue with clinicians and decision makers, and (ii) increasing the readiness for patient engagement uptake within targeted organizations.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.