ArticleJMIR mHealth and uHealth2017
Acceptance of Mobile Health in Communities Underrepresented in Biomedical Research: Barriers and Ethical Considerations for Scientists.
Article in JMIR mHealth and uHealth, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02505165 (A Clinic-Based Interdisciplinary Intervention for Parents of Children With Cancer), which is not on this map. Cited by 35 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
A Clinic-Based Interdisciplinary Intervention for Parents of Children With Cancer
Who cites it
35 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- The Efficacy of Health Information Technology in Supporting Health Equity for Black and Hispanic Patients With Chronic Diseases: Systematic Review.Journal of medical Internet research · 2022Pooled it
- Telemedicine in Malignant and Nonmalignant Hematology: Systematic Review of Pediatric and Adult Studies.JMIR mHealth and uHealth · 2021Pooled it
- Systematic review of smartphone-based passive sensing for health and wellbeing.Journal of biomedical informatics · 2018Pooled it
- Co-Designing Technology to Reduce Health Disparities and Address New Norms Post-COVID-19: Proposal for a Mixed Methods Community-Based Participatory Research Approach.JMIR research protocols · 2025Article
- Perspectives of Hispanic and Latinx Community Members on AI-Enabled mHealth Tools: Qualitative Focus Group Study.Journal of medical Internet research · 2025Article
- Building a Digital Health Research Platform to Enable Recruitment, Enrollment, Data Collection, and Follow-Up for a Highly Diverse Longitudinal US Cohort of 1 Million People in the All of Us Research Program: Design and Implementation Study.Journal of medical Internet research · 2025Article
- Biosensing and Biosensors-Terminologies, Technologies, Theories and Ethics.Geography compass · 2024Review
- Predicting the Transition From Depression to Suicidal Ideation Using Facebook Data Among Indian-Bangladeshi Individuals: Protocol for a Cohort Study.JMIR research protocols · 2024Article
- Mapping the ethical landscape of digital biomarkers: A scoping review.PLOS digital health · 2024Article
- Ethical issues in direct-to-consumer healthcare: A scoping review.PLOS digital health · 2024Article
- Article
- Effectiveness and implementation of a text messaging intervention to reduce depression and anxiety symptoms among Latinx and Non-Latinx white users during the COVID-19 pandemic.Behaviour research and therapy · 2023Article
- Digital Connectedness in the Jackson Heart Study: Cross-sectional Study.Journal of medical Internet research · 2022Article
- Modeling the impact of digital readiness in recruiting and sustaining underrepresented groups: Data from theFrontiers in digital health · 2022Article
- Lessons Learned: Beta-Testing the Digital Health Checklist for Researchers Prompts a Call to Action by Behavioral Scientists.Journal of medical Internet research · 2021Article
- Privacy and Confidentiality Concerns Related to the Use of mHealth Apps for HIV Prevention Efforts Among Malaysian Men Who Have Sex With Men: Cross-sectional Survey Study.JMIR formative research · 2021Article
- Tailored physical activity behavior change interventions: challenges and opportunities.Translational behavioral medicine · 2021Review
- Mobile Health Technology and Healthcare Providers: Systemic Barriers to Adoption.Healthcare informatics research · 2021Article
- Geolocation, ethics, and HIV research.Health and technology · 2021Article
- Precision Health: The Role of the Social and Behavioral Sciences in Advancing the Vision.Annals of behavioral medicine : a publication of the Society of Behavioral Medicine · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
backgroundThe rapid expansion of direct-to-consumer wearable fitness products (eg, Flex 2, Fitbit) and research-grade sensors (eg, SenseCam, Microsoft Research; activPAL, PAL Technologies) coincides with new opportunities for biomedical and behavioral researchers. Underserved communities report among the highest rates of chronic disease and could benefit from mobile technologies designed to facilitate awareness of health behaviors. However, new and nuanced ethical issues are introduced with new technologies, which are challenging both institutional review boards (IRBs) and researchers alike. Given the potential benefits of such technologies, ethical and regulatory concerns must be carefully considered.
objectiveOur aim was to understand potential barriers to using wearable sensors among members of Latino, Somali and Native Hawaiian Pacific Islander (NHPI) communities. These ethnic groups report high rates of disparate health conditions and could benefit from wearable technologies that translate the connection between physical activity and desired health outcomes. Moreover, these groups are traditionally under-represented in biomedical research.
methodsWe independently conducted formative research with individuals from southern California, who identified as Latino, Somali, or Native Hawaiian Pacific Islander (NHPI). Data collection methods included survey (NHPI), interview (Latino), and focus group (Somali) with analysis focusing on cross-cutting themes.
resultsThe results pointed to gaps in informed consent, challenges to data management (ie, participant privacy, data confidentiality, and data sharing conventions), social implications (ie, unwanted attention), and legal risks (ie, potential deportation).
conclusionsResults shed light on concerns that may escalate the digital divide. Recommendations include suggestions for researchers and IRBs to collaborate with a goal of developing meaningful and ethical practices that are responsive to diverse research participants who can benefit from technology-enabled research methods.
trial registrationClinicalTrials.gov NCT02505165; https://clinicaltrials.gov/ct2/show/NCT02505165 (Archived by WebCite at http://www.Webcitation.org/6r9ZSUgoT).
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.