ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2017
Children's family experiences: development of the PROMIS
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 37 papers.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
37 citing papers in PubMed.
- In-Person Bullying and Cyberbullying in the Texas Youth Depression and Suicide Research Network: Associations with Clinical Presentations.Child psychiatry and human development · 2026Article
- Social Relationships and Experimental Pain Sensitivity in Healthy Adolescent Girls: An Exploratory Preliminary Study.European journal of pain (London, England) · 2026Observational
- Adolescent outcomes of Post-operative opioid EXposure (APEX): Protocol for a multisite observational study.Journal of substance use and addiction treatment · 2026Article
- An Investigation of Family Functioning Among Caregiver-Adolescent Dyads Seeking Emergency Department Care for Adolescent Suicide Risk.Research on child and adolescent psychopathology · 2026Article
- Measurement Invariance of the PROMIS Family Relationships Scale Among Autistic and General Population Adolescents.Autism research : official journal of the International Society for Autism Research · 2026Article
- Feasibility and proof-of-concept of a combined resilience and social connection intervention for adolescents and young adults with cancer: a pilot randomized trial protocol.Pilot and feasibility studies · 2026Review
- ADHD in Youth With Major Depressive Disorder in the Texas Youth Depression and Suicide Research Network (TX-YDSRN): Clinical Correlates and Moderators.Journal of attention disorders · 2025Article
- Socio-ecological domains and adolescent mental health: An application of the dual-factor model.Journal of research on adolescence : the official journal of the Society for Research on Adolescence · 2025Article
- Designing a Measure of Body Image: Cognitive Interview Findings from an Adolescent and Young Adult Cancer Sample.Journal of adolescent and young adult oncology · 2025Article
- Anxiety and Depression Symptoms Improve in Partial Hospitalization Treatment for Adolescents with and without Suicidal Thoughts and Behaviors: Leveraging Measurement-Based Care and Electronic Health Record Data.Evidence-based practice in child and adolescent mental health · 2025Article
- Measurement-Based Care in a Remote Intensive Outpatient Program: Pilot Implementation Initiative.JMIR formative research · 2024Article
- The effects of family support and smartphone-derived homestay on daily mood and depression among sexual and gender minority adolescents.Journal of psychopathology and clinical science · 2024Article
- Social Support, Stress, and Mental Health: Examining the Stress-Buffering Hypothesis in Adolescent Football Athletes.Journal of athletic training · 2024Article
- Patient-Reported Outcomes to Describe Global Health and Family Relationships in Pediatric Weight Management.Childhood obesity (Print) · 2024Article
- The Study of Adolescent Resilience (SOAR): a research protocol.Frontiers in child and adolescent psychiatry · 2024Article
- Disturbed sleep and patterns of psychiatric symptoms and function in a school-based sample of adolescents.Clinical child psychology and psychiatry · 2023Article
- Patient-Reported Outcomes Over 24 Months in Pediatric CKD: Findings From the MyKidneyHealth Cohort Study.American journal of kidney diseases : the official journal of the National Kidney Foundation · 2023Article
- Obsessive-compulsive disorder in youth and young adults with depression: Clinical characteristics of comorbid presentations.Journal of obsessive-compulsive and related disorders · 2023Article
- The "STOP Pain" Questionnaire: using the Plan-Do-Study-Act model to implement a patient-family preferences-informed questionnaire into a pediatric transitional pain clinic.Journal of patient-reported outcomes · 2022Article
- Assessing Aspects of Social Relationships in Youth Across Middle Childhood and Adolescence: The NIH Toolbox Pediatric Social Relationship Scales.Journal of pediatric psychology · 2022Article
Corrections and comments
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Authors and funding
10 authors.
Funding
Abstract
purposeTo describe the development of pediatric family relationships measures, with versions for child self-report (8-17 years) and parent-report for children 5-17 years old. Measures were created for integration into the Patient Reported Outcomes Measurement Information System (PROMIS
methodsSemi-structured interviews with 10 experts, 24 children, and 8 parents were conducted to elicit and clarify essential elements of family relationships. A systematic literature review was conducted to identify item concepts representative of each element. The concepts were transformed into items that were iteratively revised based on cognitive interviews (n = 43 children) and item translatability review. Psychometric studies involving 2846 children and 2262 parents were conducted to further refine and validate the instruments.
resultsQualitative procedures supported the development of content valid Family Relationships item banks. Final child- and parent-report item banks each contain 47 items. Unidimensional item banks were calibrated using IRT-modeling to estimate item parameters representative of the US population and to enable computerized adaptive test administration. Four- and eight-item short forms were constructed for standard fixed format administration. All instruments have strong internal consistency, retest-reliability, and provide precise estimates of various levels of family relationship quality. Preliminary evidence of the instruments' validity was provided by known-group comparisons and convergence with legacy measures.
conclusionThe PROMIS pediatric Family Relationships measures can be applied in research focused on determinants, outcomes, and the protective effects of children's subjective family relationship experiences.
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