Evidence map›Paper›PMID 28642999›Full record

ReviewPediatric nephrology (Berlin, Germany)2018

Continually improving standards of care: The UK Renal Registry as a translational public health tool.

Lucy A Plumb, Alexander J Hamilton, Carol D Inward, Yoav Ben-Shlomo, Fergus J Caskey

Abstract readReview
In one paragraph

Review in Pediatric nephrology (Berlin, Germany), 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Review
  6. Article
  7. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Lucy A PlumbThe UK Renal Registry, Learning & Research Building, Southmead Hospital, Bristol, UK. lucy.plumb@bristol.ac.uk.
Alexander J HamiltonThe UK Renal Registry, Learning & Research Building, Southmead Hospital, Bristol, UK.
Carol D InwardUniversity Hospitals Bristol NHS Foundation Trust, Bristol, UK.
Yoav Ben-ShlomoThe UK Renal Registry, Learning & Research Building, Southmead Hospital, Bristol, UK.
Fergus J CaskeyThe UK Renal Registry, Learning & Research Building, Southmead Hospital, Bristol, UK.

Funding

Department of Health DRF-2016-09-055Research Trainees Coordinating Centre 2016-09-055
6 · The paper itself

Abstract

A disease registry uses observational study methods to collect defined data on patients with a particular condition for a predetermined purpose. By providing comprehensive standardised data on patients with kidney disease, renal registries aim to provide a 'real world' representation of practice patterns, treatment and patient outcomes that may not be captured accurately by other methods, including randomised controlled trials. Additionally, using registries to measure variations in outcomes and audit care against standards is crucial to understanding how to improve quality of care for patients in an efficacious and cost-effective manner. Registries also have the potential to be a powerful scientific tool that can monitor and support the translational process between research and routine clinical practice, although their limitations must be borne in mind. In this review, we describe the role of the UK Renal Registry as a tool to support translational research. We describe its involvement across each stage of the translational pathway: from hypothesis generation, study design and data collection, to reporting of long-term outcomes and quality improvement initiatives. Furthermore we explore how this role may bring about improvements in care for adults and children with kidney disease.

Indexed as

RegistriesChildHumansKidneyKidney DiseasesPublic HealthResearch DesignStandard of CareTranslational Research, BiomedicalUnited KingdomKidney diseaseRegistryStandardsTranslational research

Identifiers

PMID28642999
PMCPMC5799353

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.