ArticleJournal of pediatric psychology2017
Pediatric to Adult Care Transition: Perspectives of Young Adults With Sickle Cell Disease.
Article in Journal of pediatric psychology, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 42 citations in OpenAlex.
- Mechanism-informed transition from pediatric to adult care in sickle cell disease: a case study.BMC health services research · 2026Article
- Transition and clinical outcomes among AYA with sickle cell disease.Health care transitions · 2026Article
- Statewide Academic Performance of High School Students With Sickle Cell Disease.Pediatric blood & cancer · 2025Article
- Developing a transition workshop for adolescents with sickle cell disease.Health care transitions · 2024Article
- Health literacy correlates with abbreviated full-scale IQ in adolescent and young adults with sickle cell disease.Pediatric blood & cancer · 2023Article
- Navigating liminal spaces together: a qualitative metasynthesis of youth and parent experiences of healthcare transition.Journal of transition medicine · 2023Review
- Sickle cell disease and adolescents' perspectives on self-care management resources.Health care transitions · 2023Article
- Transition for Adolescents and Young Adults With Sickle Cell Disease in a US Midwest Urban Center: A Multilevel Perspective on Barriers, Facilitators, and Future Directions.Journal of pediatric hematology/oncology · 2022Article
- Pediatric-Adult Care Transition: Perceptions of Adolescent and Young Adult Patients with Sickle Cell Disease and Their Healthcare Providers.Patient preference and adherence · 2022Article
- Progression of central nervous system disease from pediatric to young adulthood in sickle cell anemia.Experimental biology and medicine (Maywood, N.J.) · 2021Article
- Understanding barriers to transition from pediatric to adult care among young adults with sickle cell disease to develop a transition mentor program.Clinical practice in pediatric psychology · 2021Article
- The sickle cell disease implementation consortium: Translating evidence-based guidelines into practice for sickle cell disease.American journal of hematology · 2018Article
- Transition to adulthood and adult health care for patients with sickle cell disease or cystic fibrosis: Current practices and research priorities.Journal of clinical and translational science · 2018Review
- Introduction to the Special Issue on Adolescent and Young Adult Health: Why We Care, How Far We Have Come, and Where We Are Going.Journal of pediatric psychology · 2017Article
- Youths' Experiences of Transition from Pediatric to Adult Care: An Updated Qualitative Metasynthesis.Journal of pediatric nursingArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 1 institution in 1 country.
Funding
Abstract
Objectives: The aim of this study was to explore perspectives of transition and transition readiness of young adult patients (YAs) with sickle cell disease (SCD) who have transitioned to adult health care. Methods: In all, 19 YAs with SCD (ages 18-30 years) participated in one of three focus groups and completed a brief questionnaire about transition topics. Transcripts were coded and emergent themes were examined using the social-ecological model of adolescent and young adult readiness for transition (SMART). Results: Themes were consistent with most SMART components. Adult provider relationships and negative medical experiences emerged as salient factors. YAs ranked choosing an adult provider, seeking emergency care, understanding medications/medication adherence, knowing SCD complications, and being aware of the impact of health behaviors as the most important topics to include in transition programming. Conclusions: The unique perspectives of YAs can inform the development and evaluation of SCD transition programming by incorporating the identified themes.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.