Evidence map›Paper›PMID 28634734›Full record

ArticleJournal of cancer survivorship : research and practice2017

Exploring the digital technology preferences of teenagers and young adults (TYA) with cancer and survivors: a cross-sectional service evaluation questionnaire.

Esha Abrol, Mike Groszmann, Alexandra Pitman, Rachael Hough, Rachel M Taylor, Golnar Aref-Adib

Open access · hybridAbstract read
In one paragraph

Article in Journal of cancer survivorship : research and practice, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers.

0numbers the graph read from it
0cells of the map it votes in
34citing papers in PubMed
26.9field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

34 citing papers in PubMed, 68 citations in OpenAlex.

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  3. Engagement with INSPIRE, an Online Program for Hematopoietic Cell Transplantation Survivors.Biology of blood and marrow transplantation : journal of the American Society for Blood and Marrow Transplantation · 2018
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  8. Perspectives From Adolescent and Young Adult Cancer Survivors for a Planned Nurse-Patient Dyadic Storytelling Intervention.Journal of holistic nursing : official journal of the American Holistic Nurses' Association · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 4 institutions in 1 country.

Esha AbrolHighgate Mental Health Centre, Camden and Islington NHS Foundation Trust, Dartmouth Park Hill, N19 5NX, London, UK.
Mike GroszmannTeenage & Young Adult Psych-Oncology Team, Psychological Medicine Dept. Paediatric & Adolescent Division, University College London Hospital NHS Foundation Trust; UCL Undergraduate Medical School, 6th Floor, 250 Euston Road, UCLH, NW1 2BU, London, UK. Michael.Groszmann@nhs.net.
Alexandra PitmanMacmillan Cancer Psychological Support Team, St George's University Hospitals NHS Foundation Trust, London, UK.
Rachael HoughHaematology and Stem Cell Transplantation, University College London Hospital NHS Foundation Trust, London, UK.
Rachel M TaylorUniversity College London Hospital NHS Foundation Trust, London, UK.
Golnar Aref-AdibDivision of Psychiatry, University College London, 149 Tottenham Court Road, W1T 7NF, London, UK.
University College London · GBUniversity College London Hospitals NHS Foundation Trust · GBCamden and Islington NHS Foundation Trust · GBRoyal London Hospital · GB

Funding

Department of Health RP-PG-1209-10013Medical Research Council G0802441
6 · The paper itself

Abstract

purposeDigital technology has the potential to support teenagers and young adults (TYAs) with cancer from the onset of their disease into survivorship. We aimed to establish (1) the current pattern of use of TYA digital technologies within our service-user population, and (2) their preferences regarding digital information and support within the service.

methodsA cross-sectional survey was administered as a paper and online self-completed questionnaire to TYAs aged 13-24 accessing outpatient, inpatient, and day care cancer services at a regional specialist centre over a 4-week period.

resultsOne hundred two TYAs completed the survey (55.7% male; 39.8% female; 83.3% paper; 16.7% online; mean age 18.5 years [SD = 3.51]). Of the TYAs, 41.6% rated the importance of digital communication as "essential" to their lives. Half (51.0%) kept in contact with other patients they had met during treatment, and 12.0% contacted patients they had not met in person. Respondents wanted to receive clinical information online (66.3%) and use online chat rooms (54.3%). Future online services desired included virtual online groups (54.3%), online counselling or psychological support (43.5%), and receiving (66.3%) and sharing (48.9%) clinical information online.

conclusionsYoung people with cancer are digital natives. A significant subgroup expressed a desire for digital resources from oncology services, though existing resources are also highly valued. Digital resources have potential to improve patient experience and engagement. IMPLICATIONS FOR CANCER SURVIVORS: There is considerable scope to develop digital resources with which TYAs can receive information and connect with both professionals and fellow patients, following diagnosis, through treatment and survivorship.

Indexed as

AdolescentAdultCancer SurvivorsCross-Sectional StudiesFemaleHumansMaleNeoplasmsSocial MediaSurveys and QuestionnairesTechnologyYoung AdultAYADigital communicationsPsycho-oncologyService developmentSurvivorshipTechnologyTeenagersTYAYoung adults

Identifiers

PMID28634734
PMCPMC5671543
OpenAlexW2688202802

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.