ArticleJournal of the American Medical Informatics Association : JAMIA2018
An informatics research agenda to support patient and family empowerment and engagement in care and recovery during and after hospitalization.
Article in Journal of the American Medical Informatics Association : JAMIA, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed.
- Engaging hospitalized patients with personalized health information: a randomized trial of an inpatient portal.Journal of the American Medical Informatics Association : JAMIA · 2019Trial
- Evaluation of electronic health record-integrated digital health tools to engage hospitalized patients in discharge preparation.Journal of the American Medical Informatics Association : JAMIA · 2021Article
- Stakeholder Perspectives in Anticipation of Sharing Physicians' Notes With Parents of Hospitalized Children.Academic pediatrics · 2021Article
- Putting the social back into sociotechnical: Case studies of co-design in digital health.Journal of the American Medical Informatics Association : JAMIA · 2021Article
- Provider Experiences With Offering Families Bedside Health Record Access Across a Children's Hospital.Hospital pediatrics · 2020Article
- Human-Computer Interaction, Ethics, and Biomedical Informatics.Yearbook of medical informatics · 2020Review
- Interactive Digital Health Tools to Engage Patients and Caregivers in Discharge Preparation: Implementation Study.Journal of medical Internet research · 2020Article
- Facilitating Organizational Change to Accommodate an Inpatient Portal.Applied clinical informatics · 2019Article
- Parental Perceptions of Displayed Patient Data in a PICU: An Example of Unintentional Empowerment.Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2019Article
- Potential of an Electronic Health Record-Integrated Patient Portal for Improving Care Plan Concordance during Acute Care.Applied clinical informatics · 2019Article
- Inpatients Sign On: An Opportunity to Engage Hospitalized Patients and Caregivers Using Inpatient Portals.Medical care · 2019Article
- Balancing Between Privacy and Patient Needs for Health Information in the Age of Participatory Health and Social Media: A Scoping Review.Yearbook of medical informatics · 2018Article
- Framework for Evaluating and Implementing Inpatient Portals: a Multi-stakeholder Perspective.Journal of medical systems · 2018Article
- Training to Optimize Collaborative Use of an Inpatient Portal.Applied clinical informatics · 2018Article
- Common Consumer Health-Related Needs in the Pediatric Hospital Setting: Lessons from an Engagement Consultation Service.Applied clinical informatics · 2018Article
- Article
- Exploring the Design of an Inpatient Peer Support Tool: Views of Adult Patients.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2018Article
- Must We Bust the Trust?: Understanding How the Clinician-Patient Relationship Influences Patient Engagement in Safety.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
13 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
As part of an interdisciplinary acute care patient portal task force with members from 10 academic medical centers and professional organizations, we held a national workshop with 71 attendees representing over 30 health systems, professional organizations, and technology companies. Our consensus approach identified 7 key sociotechnical and evaluation research focus areas related to the consumption and capture of information from patients, care partners (eg, family, friends), and clinicians through portals in the acute and post-acute care settings. The 7 research areas were: (1) standards, (2) privacy and security, (3) user-centered design, (4) implementation, (5) data and content, (6) clinical decision support, and (7) measurement. Patient portals are not yet in routine use in the acute and post-acute setting, and research focused on the identified domains should increase the likelihood that they will deliver benefit, especially as there are differences between needs in acute and post-acute care compared to the ambulatory setting.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.