ArticleThe American journal of hospice & palliative care2018
Awareness and Misperceptions of Hospice and Palliative Care: A Population-Based Survey Study.
Article in The American journal of hospice & palliative care, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 74 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
74 citing papers in PubMed, 2 syntheses or guidelines pooled it, 190 citations in OpenAlex.
- Decision-making factors related to palliative care and hospice use in the community: a systematic review based on Andersen's behavioural model of health services use.BMC palliative care · 2025Pooled it
- Challenges on the provision of palliative care for patients with cancer in low- and middle-income countries: a systematic review of reviews.BMC palliative care · 2020Pooled it
- Reluctance to Accept Palliative Care and Recommendations for Improvement: Findings From Semi-Structured Interviews With Patients and Caregivers.The American journal of hospice & palliative care · 2022Trial
- Family Caregivers' Understanding, Expectations, and Emotional Responses During Transition to a Palliative Care Unit: A Qualitative Study.Nursing open · 2026Article
- Palliative Care Awareness Among Caregivers of Cancer Patients in Turkey: A Cross-Sectional Study.Current oncology (Toronto, Ont.) · 2026Article
- Positive impact of training and support on improving the proficiency of nurses providing palliative care to babies, children and young people in hospital.Evidence-based nursing · 2026Article
- How to talk about death? A cross-sectional survey on patients', informal caregivers' and health care professionals' views in the setting of allogenic hematopoietic stem cell transplantation.Annals of hematology · 2026Article
- A Multidimensional Narrative Review of Disparities in Hospice Care Use.The American journal of hospice & palliative care · 2026Article
- Unpacking Multi-Layered Challenges in Palliative Care Transitions: A Descriptive Qualitative Study of Multidisciplinary Teams in China.Journal of multidisciplinary healthcare · 2026Article
- An analysis of palliative care in adolescents and young adults with soft tissue and bone sarcomas.Palliative care and social practice · 2026Article
- Advancing the understanding of palliative care in Singapore: knowledge, attitudes, receptiveness, and the moderating role of media information-seeking preferences.Frontiers in public health · 2026Article
- Palliative care in patients with brain metastases from breast cancer: a qualitative descriptive study of attitudes, practices, and barriers.BMC palliative care · 2025Article
- Improving Palliative Care Knowledge and Intentions Among Great Plains American Indians: Efficacy Results From a Randomized Clinical Trial Testing a Culture-Centric Palliative Care Message.The American journal of hospice & palliative care · 2025Article
- Non-curative care options for patients with advanced-stage head and neck cancer: Current state of the science and future opportunities.Palliative & supportive care · 2025Review
- Article
- The effects of narrative care combined with life review on psychological distress, meaning in life, and quality of life in advanced cancer patients receiving hospice care: a randomized clinical trial.Frontiers in psychology · 2025Article
- Clinician attitudes toward palliative care to enhance the quality of life for patients with sickle cell disease.Journal of sickle cell disease · 2025Article
- Attitudes toward palliative care among cancer patients: a multi-method study.Frontiers in public health · 2025Article
- Early Palliative Care Following Aborted Cancer Surgery: Results of a Prospective Feasibility Trial.Annals of surgery open : perspectives of surgical history, education, and clinical approaches · 2024Article
- Palliative Care Acceptability for Older Adults with Advanced CKD: A Qualitative Study of Patients and Nephrologists.Kidney medicine · 2024Article
14 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 2 institutions in 1 country.
Funding
Abstract
backgroundDespite the documented benefits of palliative and hospice care on improving patients' quality of life, these services remain underutilized. Multiple factors limit the utilization of these services, including patients' and caregivers' lack of knowledge and misperceptions.
objectivesTo examine palliative and hospice care awareness, misperceptions, and receptivity among community-dwelling adults.
designCross-sectional study. SUBJECTS: New York State residents ≥18 years old who participated in the 2016 Empire State Poll. OUTCOMES MEASURED: Palliative and hospice care awareness, misperceptions, and receptivity.
resultsOf the 800 participants, 664 (83%) and 216 (27%) provided a definition of hospice care and palliative care, respectively. Of those who defined hospice care, 399 (60%) associated it with end-of-life care, 89 (13.4%) mentioned it was comfort care, and 35 (5.3%) reported hospice care provides care to patients and families. Of those who defined palliative care (n = 216), 57 (26.4%) mentioned it provided symptom management to patients, 47 (21.9%) stated it was comfort care, and 19 (8.8%) reported it was applicable in any course of an illness. Of those who defined hospice or palliative care, 248 (37.3%) had a misperception about hospice care and 115 (53.2%) had a misperception about palliative care.
conclusionsMost community-dwelling adults did not mention the major components of palliative and hospice care in their definitions, implying a low level of awareness of these services, and misinformation is common among community-dwelling adults. Palliative and hospice care education initiatives are needed to both increase awareness of and reduce misperceptions about these services.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.