ReviewCurrent rheumatology reports2017
Framework for Advancing the Reporting of Patient Engagement in Rheumatology Research Projects.
Review in Current rheumatology reports, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
25 citing papers in PubMed.
- Citizen science in osteoarthritis research: a scoping review.Journal of orthopaedic surgery and research · 2025Article
- Introducing PROSPECT: a novel process for prospectively tracking research engagement.Health research policy and systems · 2025Article
- Co-Authoring and Reporting on Lived Experience Engagement in Mental Health and/or Substance Research: A Qualitative Study and Guidance Document.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Identifying strategies and related principles supporting a co-design approach in an assistive device service delivery and research platform.Frontiers in rehabilitation sciences · 2024Article
- Evaluating the impact of engaging older adults and service providers as research partners in the co-design of a community mobility-promoting program: a mixed methods developmental evaluation study.Research involvement and engagement · 2023Article
- Systematic overviews of partnership principles and strategies identified from health research about spinal cord injury and related health conditions: A scoping review.The journal of spinal cord medicine · 2023Article
- Research Buddy partnership in a MD-PhD program: lessons learned.Research involvement and engagement · 2023Article
- 'It's the empathy'-defining a role for peer support among people living with chronic kidney disease: a qualitative study.BMJ open · 2022Article
- Engaging Families in Life Course Intervention Research: An Essential Step in Advancing Equity.Pediatrics · 2022Article
- Experiences of self-care during the COVID-19 pandemic among individuals with rheumatoid arthritis: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- A Systematic Review of Patient Engagement Experiences in Brain Disorders.Patient related outcome measures · 2022Review
- Article
- Immediate effect of the COVID-19 pandemic on patient health, health-care use, and behaviours: results from an international survey of people with rheumatic diseases.The Lancet. Rheumatology · 2021Article
- Patient-centered Outcomes Research in Interstitial Lung Disease: An Official American Thoracic Society Research Statement.American journal of respiratory and critical care medicine · 2021Article
- Shortening and validation of the Patient Engagement In Research Scale (PEIRS) for measuring meaningful patient and family caregiver engagement.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Capturing Patient-Reported Outcomes During the COVID-19 Pandemic: Development of the COVID-19 Global Rheumatology Alliance Patient Experience Survey.Arthritis care & research · 2020Article
- A review of reviews on principles, strategies, outcomes and impacts of research partnerships approaches: a first step in synthesising the research partnership literature.Health research policy and systems · 2020Review
- Co-design of a patient experience survey for arthritis central intake: an example of meaningful patient engagement in healthcare design.BMC health services research · 2019Article
- Evaluating the Relationship between Well-Being and Living with a Dog for People with Chronic Low Back Pain: A Feasibility Study.International journal of environmental research and public health · 2019Article
- Tools to improve reporting of patient-oriented research.CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purpose of reviewThe term "patient engagement in research" refers to patients and their surrogates undertaking roles in the research process beyond those of study participants. This paper proposes a new framework for describing patient engagement in research, based on analysis of 30 publications related to patient engagement. RECENT
findingsOver the past 15 years, patients' perspectives have been instrumental in broadening the scope of rheumatology research and outcome measurement, such as evaluating fatigue in rheumatoid arthritis. Recent reviews, however, highlight low-quality reporting of patient engagement in research. Until we have more detailed information about patient engagement in rheumatology research, our understanding of how patients' perspectives are being integrated into research projects remains limited. When authors follow our guidance on the important components for describing patients' roles and function as "research partners," researchers and other knowledge users will better understand how patients' perspectives were integrated in their research projects.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.