ArticleInternational journal of qualitative studies on health and well-being2017
Connecting with healthcare providers at diagnosis: adolescent/young adult cancer survivors' perspectives.
Article in International journal of qualitative studies on health and well-being, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed.
- "Living life as if I never had cancer": A study of the meaning of living well in adolescents and young adults who have experienced cancer.Pediatric blood & cancer · 2020Trial
- Top 10 research priorities for adolescent and young adult cancer in Canada: a James Lind Alliance priority setting partnership.BMJ open · 2026Article
- Surviving more than cancer: the unseen toll of financial toxicity and basic needs insecurity in adolescent and young adult cancer survivors.BMC cancer · 2026Article
- Characterizing open and avoidant communication in parents' caregiving experiences of adolescents and young adults (AYAs) living with blood cancer: Linking communication and psychosocial outcomes.Palliative & supportive care · 2026Article
- Review
- Exploring different stakeholders' perspectives on ward rounds in paediatric oncology: a qualitative study.BMC medical education · 2023Article
- Humanistic nursing tailored to the needs of young men with cancer.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2023Article
- Article
- Voicing their choices: Advance care planning with adolescents and young adults with cancer and other serious conditions.Palliative & supportive care · 2022Article
- Multidisciplinary Management of Adolescent and Young Adult Patients with Hodgkin Lymphoma.Current treatment options in oncology · 2021Review
- Adolescents and young adults' (AYA) views on their cancer knowledge prior to diagnosis: Findings from a qualitative study involving AYA receiving cancer care.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Balancing Hope and Risk Among Adolescent and Young Adult Cancer Patients with Late-Stage Cancer: A Qualitative Interview Study.Journal of adolescent and young adult oncology · 2018Article
- A Connectedness Primer for Healthcare Providers: Adolescents/Young Adult Cancer Survivors' Perspectives on Behaviors That Foster Connectedness During Cancer Treatment and the Resulting Positive Outcomes.Journal of adolescent and young adult oncology · 2018Article
- Article
- Illness Uncertainty and Posttraumatic Stress in Young Adults With Congenital Heart Disease.The Journal of cardiovascular nursingArticle
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
Adolescents and young adults (AYAs) with cancer are a vulnerable and underserved population. AYAs' cancer survivorship is complicated by physical and psychosocial late effects which requires long-term follow-up. Connectedness with healthcare providers (HCPs) is a protective factor that may improve long-term follow-up behaviours of AYAs. However, little is known about AYAs' experiences connecting with HCPs. The purpose of this study was to describe AYA cancer survivors' experiences connecting with HCPs. This empirical phenomenological study interviewed nine AYA cancer survivors diagnosed during adolescence. Individual interviews were conducted and analysed using an adapted Colaizzi approach. The essential structure reveals that AYAs begin their experience of connectedness with a sense of disconnectedness prior to treatment. The diagnosis is a period of confusion and emotional turmoil that interfere with the AYAs' ability to connect. When AYAs come to accept their illness and gain familiarity with the environment, they then put forth an effort to connect with HCPs. Although it takes time for AYAs to reciprocate efforts to connect, HCPs should be aware that AYAs carefully assess and make judgments about whether or not HCPs can be trusted. Findings raise awareness of the actions and behaviours of HCPs that hinder connectedness, and targeted in future research.
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