Evidence map›Paper›PMID 28609723›Full record

ArticleAddictive behaviors2017

A rural/urban comparison of privacy and confidentiality concerns associated with providing sensitive location information in epidemiologic research involving persons who use drugs.

Abby E Rudolph, April M Young, Jennifer R Havens

Abstract readComparative Study
In one paragraph

Article in Addictive behaviors, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.

0numbers the graph read from it
0cells of the map it votes in
19citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

19 citing papers in PubMed.

  1. Recruitment strategies for community-based pharmacy research.Exploratory research in clinical and social pharmacy · 2026
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  15. Feasibility and Validity of Geographically Explicit Ecological Momentary Assessment With Recall-Aided Space-Time Budgets.Journal of research on adolescence : the official journal of the Society for Research on Adolescence · 2019
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Abby E RudolphBoston University School of Public Health, Department of Epidemiology, Boston, MA 02118, USA. Electronic address: arudolph@bu.edu.
April M YoungDepartment of Epidemiology, University of Kentucky College of Public Health, Lexington, KY 40536, USA; Center on Drug and Alcohol Research, Department of Behavioral Science, University of Kentucky College of Medicine, Lexington, KY 40536, USA. Electronic address: april.young@uky.edu.
Jennifer R HavensCenter on Drug and Alcohol Research, Department of Behavioral Science, University of Kentucky College of Medicine, Lexington, KY 40536, USA. Electronic address: jhave2@uky.edu.

Funding

Examining the Impact of the Twin Epidemics of Methamphetamine and Opioid Use on Overdose, Risky Sex and Treatment Engagement among PWUD in Two Rural Appalachian CohortsR01DA033862 · NIDA · UNIVERSITY OF KENTUCKY · PI Jennifer R Havens · 2012 to 2026
$6.9M
Training Program in HIV Prevention Research EthicsR25DA031608 · NIDA · FORDHAM UNIVERSITY · PI FISHER, CELIA B · 2011 to 2025
$4.9M
Social networks and HIV risk among rural drug usersR01DA024598 · NIDA · UNIVERSITY OF KENTUCKY · PI HAVENS, JENNIFER R · 2008 to 2012
$2.6M
HIV and Substance Abuse Epidemiology among IDUs: Structural and Network Risk FactK01DA033879 · NIDA · UNIVERSITY OF CALIFORNIA, SAN DIEGO · PI RUDOLPH, ABBY ELISE · 2012 to 2016
$877k
NIDA NIH HHS K01 DA033879NIDA NIH HHS R01 DA024598NIDA NIH HHS R01 DA033862NIDA NIH HHS R25 DA031608
6 · The paper itself

Abstract

backgroundAnalyses that link contextual factors with individual-level data can improve our understanding of the "risk environment"; however, the accuracy of information provided by participants about locations where illegal/stigmatized behaviors occur may be influenced by privacy/confidentiality concerns that may vary by setting and/or data collection approach.

methodsWe recruited thirty-five persons who use drugs from a rural Appalachian town and a Mid-Atlantic city to participate in in-depth interviews. Through thematic analyses, we identified and compared privacy/confidentiality concerns associated with two survey methods that (1) collect self-reported addresses/cross-streets and (2) use an interactive web-based map to find/confirm locations in rural and urban settings.

resultsConcerns differed more by setting than between methods. For example, (1) rural participants valued interviewer rapport and protections provided by the Certificate of Confidentiality more; (2) locations considered to be sensitive differed in rural (i.e., others' homes) and urban (i.e., where drugs were used) settings; and (3) urban participants were more likely to view providing cross-streets as an acceptable alternative to providing exact addresses for sensitive locations and to prefer the web-based map approach.

conclusionRural-urban differences in privacy/confidentiality concerns reflect contextual differences (i.e., where drugs are used/purchased, population density, and prior drug-related arrests). Strategies to alleviate concerns include: (1) obtain a Certificate of Confidentiality, (2) collect geographic data at the scale necessary for proposed analyses, and (3) permit participants to provide intersections/landmarks in close proximity to actual locations rather than exact addresses or to skip questions where providing an intersection/landmark would not obfuscate the actual address.

Indexed as

ConfidentialityEpidemiologic Research DesignPrivacyAdultAppalachian RegionDrug UsersFemaleHumansMaleMid-Atlantic RegionResidence CharacteristicsRural PopulationSelf ReportUrban PopulationPersons who use drugsResearch ethics, RuralRisk environmentSubstance useUrban

Identifiers

PMID28609723
PMCPMC5544525

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.