Observational studyBMJ open2017
Transition structures and timing of transfer from paediatric to adult-based care after kidney transplantation in Germany: a qualitative study.
Observational study in BMJ open, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Transitioning adolescents to adult nephrology care: a systematic review of the experiences of adolescents, parents, and health professionals.Pediatric nephrology (Berlin, Germany) · 2020Pooled it
- Results of a multicenter, randomized trial examining a new transition model for post-kidney transplant adolescents.Scientific reports · 2025Trial
- 10 tips for a transition clinic from paediatric to adult nephrology.Clinical kidney journal · 2026Review
- [Transition in nephrology].Innere Medizin (Heidelberg, Germany) · 2025Review
- Bridging the Gap: A Review of Pediatric to Adult Transition of Care in Liver Transplantation.Pediatric transplantation · 2025Review
- Transition readiness among finnish adolescents with juvenile idiopathic arthritis.Pediatric rheumatology online journal · 2023Article
- Transition for adolescents with a rare disease: results of a nationwide German project.Orphanet journal of rare diseases · 2023Article
- [Essen transition model for neuromuscular diseases].Der Nervenarzt · 2023Article
- Essen transition model for neuromuscular diseases.Neurological research and practice · 2022Article
- Barriers to the Successful Health Care Transition of Patients with Kidney Disease: A Mixed-Methods Study on the Perspectives of Adult Nephrologists.Children (Basel, Switzerland) · 2022Article
- Multidisciplinarity in Transition Pathways for Patients With Kidney Disease: The Current State of Play.Frontiers in pediatrics · 2021Review
- Current management of transition of young people affected by rare renal conditions in the ERKNet.European journal of human genetics : EJHG · 2019Article
- Survey on Management of Transition and Transfer From Pediatric- to Adult-based Care in Pediatric Kidney Transplant Recipients in Europe.Transplantation direct · 2018Article
Corrections and comments
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Authors and funding
30 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesIt is known that transition, as a shift of care, marks a vulnerable phase in the adolescents' lives with an increased risk for non-adherence and allograft failure. Still, the transition process of adolescents and young adults living with a kidney transplant in Germany is not well defined. The present research aims to assess transition-relevant structures for this group of young people. Special attention is paid to the timing of the process.
settingIn an observational study, we visited 21 departments of paediatric nephrology in Germany. Participants were doctors (n=19), nurses (n=14) and psychosocial staff (n=16) who were responsible for transition in the relevant centres. Structural elements were surveyed using a short questionnaire. The experiential viewpoint was collected by interviews which were transcribedverbatim before thematic analysis was performed.
resultsThis study highlights that professionals working within paediatric nephrology in Germany are well aware of the importance of successful transition. Key elements of transitional care are well understood and mutually agreed on. Nonetheless, implementation within daily routine seems challenging, and the absence of written, structured procedures may hamper successful transition.
conclusionsWhile professionals aim for an individual timing of transfer based on medical, social, emotional and structural aspects, rigid regulations on transfer age as given by the relevant health authorities add on to the challenge. TRIAL REGISTRATION NUMBER: ISRCTN Registry no 22988897; results (phase I) and pre-results (phase II).
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