Evidence map›Paper›PMID 28593574›Full record

ArticleThe patient2018

Challenges of Realising Patient-Centred Outcomes for Deaf Patients.

Katherine D Rogers, Emma Ferguson-Coleman, Alys Young

Open access · greenAbstract read
PubMed Publisher
In one paragraph

Article in The patient, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed, 1 pooled it
1.4field-weighted citation impact, top 19% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 1 synthesis or guideline pooled it, 28 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Reflecting on the Deaf Experience in Healthcare.Journal of patient experience · 2025
    Article
  4. Article
  5. Care Partner Experiences in Supporting Deaf and Hard of Hearing Adults With Diabetes.Diabetes spectrum : a publication of the American Diabetes Association · 2024
    Article
  6. Article
  7. Article
  8. Article
  9. Equity in the Provision of Diabetes Self-Management Education and Support.Diabetes spectrum : a publication of the American Diabetes Association · 2022
    Article
  10. Exploring communication difficulties with deaf patients.Clinical medicine (London, England) · 2021
    Article
  11. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors at 1 institution in 1 country.

Katherine D RogersDivision of Nursing, Midwifery, and Social Work, Faculty of Biology, Medicine and Health, Manchester Academic Health Science Centre, SORD (Social Research With Deaf People), School of Health Sciences, University of Manchester, Jean McFarlane Building, Oxford Road, Manchester, M13 9PL, UK. Katherine.rogers@manchester.ac.uk.ORCID 0000-0003-0458-5715
Emma Ferguson-ColemanDivision of Nursing, Midwifery, and Social Work, Faculty of Biology, Medicine and Health, Manchester Academic Health Science Centre, SORD (Social Research With Deaf People), School of Health Sciences, University of Manchester, Jean McFarlane Building, Oxford Road, Manchester, M13 9PL, UK.ORCID 0000-0001-6614-5382
Alys YoungDivision of Nursing, Midwifery, and Social Work, Faculty of Biology, Medicine and Health, Manchester Academic Health Science Centre, SORD (Social Research With Deaf People), School of Health Sciences, University of Manchester, Jean McFarlane Building, Oxford Road, Manchester, M13 9PL, UK.ORCID 0000-0001-8551-5078
Manchester Academic Health Science Centre · GB

Funding

Alzheimer's Society Grant Award Number 119British Society for Mental Health and Deafness BSMHD1101Department of Health 12/136/79Health Services and Delivery Research Programme Grant Number: 12/136/79National Science Foundation Grant Number SBE-0541953Research Trainees Coordinating Centre National Institute for Health Research DRF- 2009-02-118
6 · The paper itself

Abstract

In general populations, it has been recognised that patients play a key role in the quality of their own healthcare. However, the idea of realising patient-centred outcomes for the signing Deaf community, who experience the world in a visual way, raises some challenging issues that are rarely acknowledged. Using published research and translational health projects involving Deaf people both in the UK and internationally, this article discusses the challenges of realising patient-centred outcomes for Deaf people who are sign language users. The discussion includes an examination of: barriers to accessing healthcare for Deaf people; the impact of an insufficient acquisition of knowledge about health-related issues; Deaf people's limited fund of information; not recognising Deaf people's values and citizenship rights; and challenges in gathering Deaf people's reported outcomes. We contend that without including Deaf people in shaping the healthcare experience for them, whether at an interpersonal level of patient engagement or at a structural level, the concept of fulfilling patient-centred outcomes for Deaf people is not achievable.

Indexed as

Patient Reported Outcome MeasuresPersons with Hearing DisabilitiesSign LanguageHealth Knowledge, Attitudes, PracticeHealth Services AccessibilityHealth StatusHumansMental HealthPatient-Centered CarePatient Participation

Identifiers

PMID28593574
OpenAlexW2620663658

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.