Evidence map›Paper›PMID 28589610›Full record

ArticleThe Milbank quarterly2017

Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience.

Sarah E Gollust, Stacy W Gray, Deanna Alexis Carere, Barbara A Koenig, Lisa Soleymani Lehmann, Amy L McGUIRE, Richard R Sharp, Kayte Spector-Bagdady, N A Wang, Robert C Green and 2 more

Abstract read
In one paragraph

Article in The Milbank quarterly, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.

0numbers the graph read from it
0cells of the map it votes in
17citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

17 citing papers in PubMed.

  1. Interaction of identity and beliefs with genetic literacy.American journal of human genetics · 2026
    Article
  2. Article
  3. Article
  4. Article
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  6. Article
  7. Article
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  10. The End of Genetic Privacy in the Blade Runner Canon.Journal of literature and science · 2021
    Article
  11. Impacts of personal DNA ancestry testing.Journal of community genetics · 2021
    Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Article
  17. An Unhealthy Mismatch.The Milbank quarterly · 2017
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Sarah E GollustUniversity of Minnesota School of Public Health.
Stacy W GrayCity of Hope Comprehensive Cancer Center, Beckman Research Institute.
Deanna Alexis CarereMcMaster University.
Barbara A KoenigUniversity of California, San Francisco.
Lisa Soleymani LehmannBrigham and Women's Hospital and Harvard Medical School.
Amy L McGUIRECenter for Medical Ethics and Health Policy, Baylor College of Medicine.
Richard R SharpMayo Clinic.
Kayte Spector-BagdadyUniversity of Michigan Medical School.
N A WangData Coordinating Center, Boston University School of Public Health.
Robert C GreenBrigham and Women's Hospital and Harvard Medical School.
J Scott RobertsUniversity of Michigan School of Public Health.
PGen Study Groupsee acknowledgments for list of nonauthor members of the PGen Study Group.

Funding

Resource ProjectU41HG006834 · NHGRI · BRIGHAM AND WOMEN'S HOSPITAL · PI MARTIN, CHRISTA LESE, REHM, HEIDI L · 2013 to 2020
$26.9M
ClinGen AI Data Delivery SupplementU24HG006834 · NHGRI · BROAD INSTITUTE, INC. · PI Marina DiStefano, CHRISTA LESE MARTIN · 2021 to 2026
$26.7M
Integration of Whole Genome Sequencing into Clinical MedicineU01HG006500 · NHGRI · BRIGHAM AND WOMEN'S HOSPITAL · PI GREEN, ROBERT C. · 2012 to 2016
$11.5M
Impact of Direct to Consumer Genetic TestingR01HG005092 · NHGRI · BRIGHAM AND WOMEN'S HOSPITAL · PI GREEN, ROBERT C., ROBERTS, SCOTT · 2010 to 2012
$1.1M
Center for Transdisciplinary ELSI Research in Translational GenomicsP20HG007243 · NHGRI · KAISER FOUNDATION RESEARCH INSTITUTE · PI HARRIS-WAI, JULIE NOEL, KOENIG, BARBARA A. · 2013 to 2016
$958k
NHGRI NIH HHS P20 HG007243NHGRI NIH HHS R01 HG005092NHGRI NIH HHS U01 HG006500NHGRI NIH HHS U24 HG006834NHGRI NIH HHS U41 HG006834
6 · The paper itself

Abstract

PubMed holds no abstract for this paper.

Indexed as

Genetic TestingPublic PolicyAdultAgedAged, 80 and overAttitude to HealthDecision MakingDemographyDirect-To-Consumer Screening and TestingFemaleGovernment RegulationHealth Services AccessibilityHumansLongitudinal StudiesMaleMiddle Agedethicsgenetic testingpublic opinionregulation

Identifiers

PMID28589610
PMCPMC5461393

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.