ArticleBMJ open2017
Clinicians' perspectives of parental decision-making following diagnosis of a severe congenital anomaly: a qualitative study.
Article in BMJ open, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed.
- Parental Decision-Making and Pregnancy Outcomes After Increased First-Trimester Nuchal Translucency: A 12-Year Cohort.Prenatal diagnosis · 2026Article
- Retrospective analysis of the indications, methods, and complications of pregnancy termination.Turkish journal of obstetrics and gynecology · 2024Article
- Perceived Impact of Healthcare Relationships and Interactions on Parental Experiences of Prenatal Diagnosis and Termination of Pregnancy for Foetal Anomaly on the Island of Ireland.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Parental information about the option to apply for pregnancy termination after the detection of a congenital abnormality and factors influencing parental decision-making: a cohort study.BMC pregnancy and childbirth · 2022Article
- Article
- Life-limiting fetal conditions and pregnancy continuation: parental decision-making processes.BMJ supportive & palliative care · 2021Article
- Diagnosis of a severe congenital anomaly: A qualitative analysis of parental decision making and the implications for healthcare encounters.Health expectations : an international journal of public participation in health care and health policy · 2018Article
- Negotiating acceptable termination of pregnancy for non-lethal fetal anomaly: a qualitative study of professional perspectives.BMJ open · 2018Article
- Patient Satisfaction after Antenatal Joint Fetal Medicine and Pediatric Surgery Counseling.Journal of Indian Association of Pediatric SurgeonsArticle
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
objectiveTo explore clinicians' perspectives on supporting parents' decision-making following diagnosis of a severe congenital anomaly, and how this is shaped by current policy.
methodsThis paper reports data collated as part of a larger project examining parents' decision-making following antenatal diagnosis. The focus of this paper is the data arising from semistructured interviews conducted with 18 clinicians, with findings further supported by data generated from consultations between clinicians and parents. All interviews and consultations were audio-recorded and transcribed verbatim, with analysis based on the constant comparative approach.
resultsThree key themes emerged which together shape the practice of clinicians working in this area: first, the law governing termination of pregnancy (TOP) and how clinicians believe this influences the context in which decisions about whether to terminate or continue an affected pregnancy are made; second, approaches to the management of cases seen as particularly challenging; and third, how clinicians understand their role when working with parents. These themes combine to create a strong desire on the part of clinicians for parents to engage in a particular 'rational' form of decision-making and to be able to demonstrate the enactment of this. This is seen as important in order to ensure the 'right' decision has been reached and, particularly when the decision is to terminate, will withstand possible scrutiny.
conclusionsThe policy context in which these decisions are made strongly shapes how clinicians practise and what they want to see from the parents with whom they work. The ways in which they seek to overcome the difficulties in interpreting the law may result in variations in the offer of late TOP, both between and within units. This may inadvertently affect the options available to women least able to engage in this idealised form of decision-making.
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Registered trials
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