ArticleJournal of the American Medical Informatics Association : JAMIA2018
Sharing and helping: predictors of adolescents' willingness to share diabetes personal health information with peers.
Article in Journal of the American Medical Informatics Association : JAMIA, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 4 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
20 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Story-based interventions for chronic health conditions in youth: a systematic review and narrative synthesis.Journal of pediatric psychology · 2026Pooled it
- Impact of digital health interventions for adolescents with type 1 diabetes mellitus on health literacy: a systematic review.BMC endocrine disorders · 2023Pooled it
- Measuring the willingness to share personal health information: a systematic review.Frontiers in public health · 2023Pooled it
- Patients' Use of Social Media for Diabetes Self-Care: Systematic Review.Journal of medical Internet research · 2020Pooled it
- Mobile Momentary Assessment and Biobehavioral Feedback for Adolescents with Type 1 Diabetes: Feasibility and Engagement Patterns.Diabetes technology & therapeutics · 2018Trial
- A study on user willingness to participate in an adverse drug event information sharing system.BMC public health · 2024Article
- Health data sharing attitudes towards primary and secondary use of data: a systematic review.EClinicalMedicine · 2024Article
- Illness perception and perceived benefits of illness among persons with type 1 diabetes.Health psychology report · 2023Article
- "Not Sure Sharing Does Anything Extra for Me": Understanding How People with Cardiovascular Disease Conceptualize Sharing Personal Health Data with Peers.International journal of environmental research and public health · 2022Article
- Pregnant women's coping strategies, participation roles and social support in the online community during the COVID-19.Information processing & management · 2022Article
- Sharing Information about Health-Related Resources: Observations from a Community Resource Referral Intervention Trial in a Predominantly African American/Black Community.Journal of the Association for Information Science and Technology · 2022Article
- Exploring needs, interests and preferences for digital mind-body tools for adolescents.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2022Article
- Willingness to Adopt mHealth Among Chinese Parents During the COVID-19 Outbreak: Cross-sectional Questionnaire Study.JMIR mHealth and uHealth · 2021Article
- Understanding the Barriers and Facilitators to Sharing Patient-Generated Health Data Using Digital Technology for People Living With Long-Term Health Conditions: A Narrative Review.Frontiers in public health · 2021Review
- Children and young people's concerns and needs relating to their use of health technology to self-manage long-term conditions: a scoping review.Archives of disease in childhood · 2020Article
- Why do children and adolescents with epilepsy disclose or not disclose their condition to their friends?European journal of pediatrics · 2020Article
- Patients' Willingness to Share Information in Online Patient Communities: Questionnaire Study.Journal of medical Internet research · 2020Article
- Diabetes management mediating effects between diabetes symptoms and health-related quality of life in adolescents and young adults with type 1 diabetes.Pediatric diabetes · 2018Article
- Using Cluster Analysis to Understand Clinician Readiness to Promote Continuous Glucose Monitoring Adoption.Journal of diabetes science and technology · 2018Article
- Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
Objective: Sharing personal information about type 1 diabetes (T1D) can help adolescents obtain social support, enhance social learning, and improve self-care. Diabetes technologies, online communities, and health interventions increasingly feature data-sharing components. This study examines factors underlying adolescents' willingness to share personal T1D information with peers. Materials and Methods: Participants were 134 adolescents (12-17 years of age; 56% female) who completed an online survey regarding experiences helping others with T1D, perceived social resources, beliefs about the value of sharing information and helping others, and willingness to share T1D information. Hemoglobin A1c values were obtained from medical records. Results: Adolescents were more willing to share how they accomplished T1D tasks than how often they completed them, and least willing to share glucose control status. In multivariate analyses, sharing/helping beliefs (β = 0.26, P < .01) and glucose control (HbA1c value; β = -0.26, P < .01) were related to greater willingness to share personal health information. Glucose control moderated relationships such that adolescents with worse A1c values had stronger relationships between sharing/helping beliefs and willingness to share (β = 0.18, P < .05) but weaker relationships between helping experience and willingness to share (β = -0.22, P = .07). Discussion: Many adolescents with T1D are willing to share personal health information, particularly if they have better diabetes health status and a stronger belief in the benefits of sharing. Conclusion: Social learning and social media components may improve intervention participation, engagement, and outcomes by boosting adolescents' beliefs about the benefits of sharing information and helping others.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.