ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2017
The impact of older person's frailty on the care-related quality of life of their informal caregiver over time: results from the TOPICS-MDS project.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.
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Who cites it
7 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Spillover Effects on Caregivers' and Family Members' Utility: A Systematic Review of the Literature.PharmacoEconomics · 2019Pooled it
- Care-Related Quality of Life of Caregivers for Patients With Low Vision and Blindness: A Cross-Sectional Study.Journal of ophthalmology · 2026Article
- Quality of life of informal caregivers 50 years old and older in Spain by household living status: a descriptive study.Scientific reports · 2025Observational
- The CarerQol Instrument: A Systematic Review, Validity Analysis, and Generalization Reliability Study.Journal of clinical medicine · 2025Review
- Factors associated with family caregiver burden among frail older persons with multimorbidity.BMC geriatrics · 2022Article
- A Clinical Bridge between Family Caregivers and Older Adults: The Contribution of Patients' Frailty and Optimism on Caregiver Burden.International journal of environmental research and public health · 2021Article
- Machine learning for identification of frailty in Canadian primary care practices.International journal of population data science · 2021Article
Corrections and comments
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Authors and funding
5 authors.
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Abstract
purposeTo examine the impact of changes in an older person's frailty on the care-related quality of life of their informal caregiver.
methodsFive research projects in the TOPICS-MDS database with data of both older person and informal caregiver at baseline and after 12 months follow-up were selected. Frailty was measured in five health domains (functional limitations, psychological well-being, social functioning, health-related quality of life, self-rated health). Care-related quality of life was measured with the Care-Related Quality of Life instrument (CarerQoL-7D), containing two positive (fulfilment, perceived support) and five negative dimensions (relational problems, mental health problems, physical health problems, financial problems, problems combining informal care with daily activities).
results660 older person/caregiver couples were included. Older persons were on average 79 (SD 6.9) years of age, and 61% was female. Caregivers were on average 65 (SD 12.6) years of age, and 68% was female. Results of the multivariable linear and logistic regression analyses showed that an increase in older person's frailty over time was related to a lower total care-related quality of life of the caregiver, and to more mental and physical health problems, and problems with combining informal care with daily activities at follow-up. A change in the older person's psychological well-being was most important for the caregiver's care-related quality of life, compared to the other health domains.
conclusionsHealth professionals observing decreasing psychological well-being of an older person and increasing hours of informal care provision should be aware of the considerable problems this may bring to their informal caregiver, and should tailor interventions to support informal caregivers according to their specific needs and problems.
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