ArticleJournal of urban health : bulletin of the New York Academy of Medicine2017
Have You Talked about It: Advance Care Planning among African Americans Living with HIV in Baltimore.
Article in Journal of urban health : bulletin of the New York Academy of Medicine, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
8 citing papers in PubMed.
- FAmily-CEntered (FACE) Advance Care Planning Among African-American and Non-African-American Adults Living With HIV in Washington, DC: A Randomized Controlled Trial to Increase Documentation and Health Equity.Journal of pain and symptom management · 2019Trial
- Community Engagement to explore Surrogate Decision-Making for HIV+ African Americans: a pilot study.Medical research archives · 2025Article
- Achieving goal-concordant care: Formal and informal advance care planning for White, Black, and Hispanic older adults.Journal of the American Geriatrics Society · 2024Article
- Advance Care Planning Among Sexual Minority Men: Sociodemographic, Health Care, and Health Status Predictors.Journal of aging and health · 2024Article
- "We've Got to Bring Information to Where People Are Comfortable": Community-Based Advance Care Planning with the Black Community.Journal of general internal medicine · 2023Article
- 'The Woman Gives': Exploring gender and relationship factors in HIV advance care planning among African American caregivers.Journal of clinical nursing · 2021Article
- A mixed-methods exploration of faith, spirituality, and health program interest among older African Americans with HIV.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Article
- Support Network Factors Associated With Naming a Health Care Decision-Maker and Talking About Advance Care Planning Among People Living With HIV.Journal of pain and symptom management · 2019Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
Advance care planning (ACP) is the process of planning for when individuals are unable to make their own healthcare decisions. Research suggests ACP is understudied among HIV-positive African Americans. We explored ACP knowledge, preferences, and practices with HIV-positive African Americans from an urban HIV-specialty clinic (AFFIRM study). Participants completed surveys and interviews. Descriptive analyses and Poisson regression were conducted on survey data. Qualitative interviews were coded using grounded theory/constant comparative method. Participants were mostly male (55.1%). Half rated their current pain as at least six out of ten (50.8%). Two-thirds had discussed ACP with providers or supporters (66.2%). Qualitative themes were: (1) impact of managing pain on quality of life and healthcare, (2) knowledge/preferences for ACP, and (3) sources of HIV supportive care and coping (N = 39). Correlates of having discussed ACP included: moderate pain intensity (p < 0.10), including supporters in health decisions (p < 0.001), religious attendance (p < 0.05), and knowledge of healthcare mandates (p < 0.01; N = 276). Findings highlight the need for patient education to document healthcare preferences and communication skills development to promote inclusion of caregivers in decision-making.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.