ArticleJournal of neuro-oncology2017
Neuro-oncology family caregivers' view on keeping track of care issues using eHealth systems: it's a question of time.
Article in Journal of neuro-oncology, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 2 syntheses or guidelines pooled it, 28 citations in OpenAlex.
- What are the experiences of supportive care in people affected by brain cancer and their informal caregivers: A qualitative systematic review.Journal of cancer survivorship : research and practice · 2024Pooled it
- Palliative care and end-of-life care in adults with malignant brain tumors.Neuro-oncology · 2023Pooled it
- The effects of SmartCareSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Trial
- A randomized wait-list controlled trial of a social support intervention for caregivers of patients with primary malignant brain tumor.BMC health services research · 2021Trial
- A Mobile App-Based Intervention Program for Nonprofessional Caregivers to Promote Positive Mental Health: Randomized Controlled Trial.JMIR mHealth and uHealth · 2021Trial
- Outcomes of an electronic social network intervention with neuro-oncology patient family caregivers.Journal of neuro-oncology · 2018Trial
- Mobile Health Apps, Family Caregivers, and Care Planning: Scoping Review.Journal of medical Internet research · 2024Article
- Telemedicine in Neuro-Oncology-An Evaluation of Remote Consultations during the COVID-19 Pandemic.Cancers · 2023Article
- Unmet needs and wish for support of family caregivers of primary brain tumor patients.Neuro-oncology practice · 2023Article
- Surveillance of long-term complications after treatment of adult brain tumor survivors-review and evidence-based recommendations.Neuro-oncology practice · 2022Review
- Family caregiver constructs and outcome measures in neuro-oncology: A systematic review.Neuro-oncology practice · 2022Review
- Men's perspectives of caring for a female partner with cancer: A longitudinal narrative study.Health & social care in the community · 2022Article
- Methods for Human-Centered eHealth Development: Narrative Scoping Review.Journal of medical Internet research · 2022Article
- Telemedicine for Outpatient Neurosurgical Oncology Care: Lessons Learned for the Future During the COVID-19 Pandemic.World neurosurgery · 2020Review
- Evaluation of the psychological burden during the early disease trajectory in patients with intracranial tumors by the ultra-brief Patient Health Questionnaire for Depression and Anxiety (PHQ-4).Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019Article
- Telemedicine in Neurological Disorders: Opportunities and Challenges.Telemedicine journal and e-health : the official journal of the American Telemedicine Association · 2019Review
- Defining unmet clinical need across the pathway of brain tumor care: a patient and carer perspective.Cancer management and research · 2019Article
- Feasibility of implementing an electronic social support and resource visualization tool for caregivers in a neuro-oncology clinic.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2018Article
- Supportive Care Needs in Glioma Patients and Their Caregivers in Clinical Practice: Results of a Multicenter Cross-Sectional Study.Frontiers in neurology · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors at 5 institutions in 3 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Primary brain tumors (PBTs) are rare but have a great impact on both patient and family caregiver wellbeing. Supporting caregivers can help them to continue their caregiving activities to maintain the patients' best possible level of quality of life. Efforts to improve PBT caregiver wellbeing should take into account country- or culture-specific differences in care issues and supportive care needs to serve larger caregiver groups. We aimed to explore PBT caregivers' satisfaction with the current supportive care provision, as well as their thoughts on monitoring their care issues with both paper-based and digital instruments. Twelve PBT caregivers were interviewed in the United States. The semi-structured interviews were transcribed verbatim and analyzed by two coders independently. Data were combined with those collected in the Netherlands, following similar methodology (N = 15). We found that PBT caregivers utilize both formal and informal support services, but that those who experience more care issues would prefer more support, particularly in the early disease phase. Keeping track of care issues was thought to provide more insight into unmet needs and help them find professional help, but it requires investment of time and takes discipline. Caregivers preferred a brief and easy-to-use 'blended care' instrument that combines digital monitoring with personal feedback. The present study shows that the preferences of family caregivers in neuro-oncology toward keeping track of care issues are likely not heavily influenced by country- or culture-specific differences. The development of any instrument thus has the potential to benefit a large group of family caregivers.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.