ArticleHealth expectations : an international journal of public participation in health care and health policy2017
"It's a fight to get anything you need" - Accessing care in the community from the perspectives of people with multimorbidity.
Article in Health expectations : an international journal of public participation in health care and health policy, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The renewed Development Model for Integrated Care: a systematic review and model update.BMC health services research · 2025Pooled it
- The experience of financial burden for people with multimorbidity: A systematic review of qualitative research.Health expectations : an international journal of public participation in health care and health policy · 2021Pooled it
- Codeveloping a Set of Quality of Care Indicators for People Living With Multiple Long-Term Conditions in Primary Care: Protocol for a Modified RAND/UCLA Study.JMIR research protocols · 2026Article
- Model of care to promote recovery in older people with long COVID: findings from interviews and a co-design workshop.BMJ open · 2026Article
- Eligible but missing out: a qualitative study of access to COVID-19 antivirals in Australia.BMC health services research · 2026Article
- A Patient-Informed Framework of Financial Strain Among Adults with Multimorbidity.Journal of general internal medicine · 2026Article
- Regional Patterns of Multimorbidity and Hospitalization in Saskatchewan's Aging Population.Healthcare (Basel, Switzerland) · 2026Article
- Article
- Racialized Immigrants' Encounters of Barriers and Facilitators in Seeking Mental Healthcare Services in Ontario, Canada.Community mental health journal · 2025Article
- Article
- Evaluation of Rehabilitation Outcomes in Patients with Chronic Neurological Health Conditions Using a Machine Learning Approach.Journal of functional morphology and kinesiology · 2024Article
- Accessing care for Long Covid from the perspectives of patients and healthcare practitioners: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- "I Had to Know About It, I Had to Find It, I Had to Know How to Access it": Experiences of Access to Rehabilitation Services Among People Living with Long COVID.Physiotherapy Canada. Physiotherapie Canada · 2024Article
- Integrated physical and mental management for China's elderly: insights from Long-gang District, Shenzhen.Frontiers in aging · 2024Review
- "None of us are lying": an interpretive description of the search for legitimacy and the journey to access quality health services by individuals living with Long COVID.BMC health services research · 2023Article
- Racial differences in prevention decision making among U.S. women at high risk of breast cancer: A qualitative study.PloS one · 2023Article
- Sociocultural and patient-health care professional related factors influencing self-management of multiethnic patients with multimorbidities: A thematic synthesis.PLOS global public health · 2023Article
- Digital Health Interventions for Depression and Anxiety Among People With Chronic Conditions: Scoping Review.Journal of medical Internet research · 2022Article
- A qualitative study of rural healthcare providers' views of social, cultural, and programmatic barriers to healthcare access.BMC health services research · 2022Article
- Putting the pieces together: A qualitative study exploring perspectives on self-management and exercise behavior among people living with multimorbidity, healthcare professionals, relatives, and patient advocates.Journal of multimorbidity and comorbidity · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThere is a growing interest in redesigning health-care systems to better manage the increasing numbers of people with multimorbidity. Knowing how patients experience health-care delivery and what they need from the health-care system are critical pieces of evidence that can be used to guide health system reforms.
objectiveThe purpose of this study was to understand the challenges patients with multimorbidity face in accessing care in the community, and the implications for patients and their families.
methodsA secondary analysis of qualitative data was conducted on semi-structured interviews with 116 patients who were receiving care in an urban rehabilitation facility in 2011. Exploratory interpretive analysis was used to identify themes about access to care.
resultsChallenges occurred at two levels: at the health system level and at the individual (patient) level. Issues at the health system level fell into two broad categories: availability of services (failing to qualify, coping with wait times, struggling with scarcity and negotiating the location of care) and service delivery (unreliable care, unmet needs, incongruent care and inflexible care). Challenges at the patient level fell into the themes of logistics of accessing care and financial strain. Patients interacted and responded to these challenges by: managing the system, making personal sacrifices, substituting with informal care, and resigning to system constraints.
conclusionIdentifying the barriers patients encounter and the lengths they go to in order to access care highlights areas where policy initiatives can focus to develop appropriate and supportive services that are more person and family-centred.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.