Evidence map›Paper›PMID 28537818›Full record

ArticleJournal of adolescent and young adult oncology2017

Adolescent and Young Adult Patients with Cancer: Perceptions of Care.

Kayla N LaRosa, Marilyn Stern, Jennifer Bleck, Courtney Lynn, Janella Hudson, Damon R Reed, Gwendolyn P Quinn, Kristine A Donovan

Open access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of adolescent and young adult oncology, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
1.6field-weighted citation impact, top 15% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 20 citations in OpenAlex.

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  7. An actionable needs assessment for adolescents and young adults with cancer: the AYA Needs Assessment & Service Bridge (NA-SB).Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021
    Article
  8. Provider perceptions' of a patient navigator for adolescents and young adults with cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019
    Article
  9. Age-Specific Patient Navigation Preferences Among Adolescents and Young Adults with Cancer.Journal of cancer education : the official journal of the American Association for Cancer Education · 2019
    Article
  10. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 2 institutions in 1 country.

Kayla N LaRosa1 Department of Educational and Psychology Studies, University of South Florida , Tampa, Florida.
Marilyn Stern2 Department of Child and Family Studies, University of South Florida , Tampa, Florida.
Jennifer Bleck2 Department of Child and Family Studies, University of South Florida , Tampa, Florida.
Courtney Lynn1 Department of Educational and Psychology Studies, University of South Florida , Tampa, Florida.
Janella Hudson3 Health Outcomes and Behavior Program, Moffitt Cancer Center , Tampa, Florida.
Damon R Reed4 Adolescent and Young Adult Program, Moffitt Cancer Center , Tampa, Florida.
Gwendolyn P Quinn3 Health Outcomes and Behavior Program, Moffitt Cancer Center , Tampa, Florida.
Kristine A Donovan3 Health Outcomes and Behavior Program, Moffitt Cancer Center , Tampa, Florida.
University of South Florida · USMoffitt Cancer Center · US

Funding

Behavioral Oncology Education & Career DevelopmentR25CA090314 · NCI · H. LEE MOFFITT CANCER CTR &RES INST · PI BRANDON, THOMAS H · 2003 to 2018
$4.0M
NCI NIH HHS R25 CA090314
6 · The paper itself

Abstract

backgroundAdolescent and young adults with cancer (AYACs) face unique medical, psychosocial, and supportive care needs. The purpose of this study was to identify AYACs perceptions and expectations of cancer care services on and off treatment.

methodsSemistructured interviews were conducted with 23 AYACs aged 19-38 years (13 on and 10 off treatment), who were receiving care at a comprehensive cancer center. Verbatim transcripts were created from audiotaped interviews and hand coded using inductive content analysis methodology.

resultsPerceptions of optimal care were reported by AYACs through two main themes as follows: perceived barriers and facilitators during treatment. Within each main theme were three subthemes, including perceived facilitators reported as the provision of social support, the website and patient portal, and the educational information provided by the cancer center. Younger female AYACs (age 19-31) on active treatment reported perceived barriers to optimal care related to the management of physical and mental health symptoms, while older patients (age 32 and up) on active treatment endorsed a fear of cancer returning. The third perceived barrier equally endorsed by patients both on and off treatment and across age ranges included limited assistance with financial issues.

conclusionsAYACs reported perceived barriers and facilitators to optimal care. Implications for these findings are discussed in the context of the importance of adding a patient navigator to the AYACs care team.

Indexed as

AdultFemaleHumansMaleNeoplasmsPerceptionQuality of Health CareYoung Adultbarriershealth servicespatient needsqualitativequality of care

Identifiers

PMID28537818
PMCPMC5725627
OpenAlexW2619090173

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.