ArticleAdvances in therapy2017
Life Impact and Treatment Preferences of Individuals with Asthma and Chronic Obstructive Pulmonary Disease: Results from Qualitative Interviews and Focus Groups.
Article in Advances in therapy, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
32 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Impact of Single Combination Inhaler versus Multiple Inhalers to Deliver the Same Medications for Patients with Asthma or COPD: A Systematic Literature Review.International journal of chronic obstructive pulmonary disease · 2020Pooled it
- The effect of web-designed education on medication adherence, asthma control and fatigue in patients with asthma: A randomized controlled trial.International journal of nursing practice · 2024Trial
- A descriptive follow-up interview study assessing patient-centred outcomes: Salford Lung Study in Asthma (SLS Asthma).NPJ primary care respiratory medicine · 2019Trial
- Follow-up interviews from The Salford Lung Study (COPD) and analyses per treatment and exacerbations.NPJ primary care respiratory medicine · 2019Trial
- Salford Lung Study in chronic obstructive pulmonary disease (SLS COPD): follow-up interviews on patient-centred outcomes.NPJ primary care respiratory medicine · 2017Trial
- Patient perceptions of inhaled asthma medications: a qualitative study in Northern Sri Lanka.BMJ open · 2026Article
- A Metasynthesis of Qualitative Literature to Inform the Selection of Meaningful and Measurable Health Concepts for Clinical Trials in COPD.Chronic obstructive pulmonary diseases (Miami, Fla.) · 2025Article
- Association of delayed asthma diagnosis with asthma exacerbations in children.The journal of allergy and clinical immunology. Global · 2025Article
- Support Needs of Patients with Chronic Obstructive Pulmonary Disease (COPD) and Asthma Throughout Their Patient Journey: A Qualitative Study.International journal of chronic obstructive pulmonary disease · 2025Article
- Adult-onset asthma, allergy, and aspirin hypersensitivity associate with self-reported food avoidance.European clinical respiratory journal · 2024Article
- What bothers severe asthma patients most? A paired patient-clinician study across seven European countries.ERJ open research · 2023Article
- The Efficacy and Safety of First-Line Single-Inhaler Triple versus Dual Therapy in Controller-Naïve and Symptomatic Adults with Asthma: A Preliminary Retrospective Cohort Study.Journal of asthma and allergy · 2023Article
- People living with moderate-to-severe COPD prefer improvement of daily symptoms over the improvement of exacerbations: a multicountry patient preference study.ERJ open research · 2022Article
- Understanding barriers to and strategies for medication adherence in COPD: a qualitative study.BMC pulmonary medicine · 2022Article
- Prioritization and Refinement of Patient-Informed Value Elements as Attributes for Chronic Obstructive Pulmonary Disease Treatment Preferences.The patient · 2021Article
- Dual versus monotherapy with bronchodilators in GOLD group B COPD patients according to baseline FEVRespiratory research · 2021Article
- The potential role of local pharmacies to assess asthma control: an Italian cross-sectional study.BMC public health · 2021Article
- Treatment Preferences of Patients with Chronic Obstructive Pulmonary Disease: Results from Qualitative Interviews and Focus Groups in the United Kingdom, United States, and Germany.Chronic obstructive pulmonary diseases (Miami, Fla.) · 2021Article
- Stigma Experiences in People with Chronic Obstructive Pulmonary Disease: An Integrative Review.International journal of chronic obstructive pulmonary disease · 2021Review
- [The Disease Management Experience of Patients with Asthma: Grounded Theory Approach].Journal of Korean Academy of Nursing · 2020Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionThe impact of asthma and chronic obstructive pulmonary disease (COPD) on individuals' lives may be substantial, yet clinical practice often focuses only on symptoms. We aimed to better understand the perspective of asthma or COPD patients and to identify condition-related burden, life impact, priorities, unmet needs, and treatment goals.
methodsIndividuals aged at least 18 years with asthma or COPD were identified by a recruitment panel via clinical referrals, support groups, consumer networks, and a patient database. Interviews were carried out individually (by telephone) or in focus groups (with no more than five participants per group). A semi-structured interview guide was used with prespecified topics, informed by a literature review, that were considered impactful in asthma or COPD (symptoms and daily-life impact, satisfaction with current treatment, important aspects of treatment, adherence, and ideal treatment).
resultsOverall, 72 people participated in focus groups/individual interviews (asthma n = 18/n = 21; COPD n = 15/n = 18). "Shortness of breath" was the most frequently reported symptom; however, participants discussed the life impact of their condition more than symptoms alone. Reported physical impacts included the inability to sleep and socialize, while emotional impacts included "embarrassment, stigma, and/or self-consciousness", "fear and/or panic", and "sadness, anxiety, and/or depression". Coping mechanisms for normal activities included continuing at reduced pace and avoidance. Treatment preferences centered on resolving impacts; improved sleep, "speed of action", and "length of relief" were the most frequently reported ideal treatment factors.
conclusionPatients with asthma or COPD experience substantial quality of life limitations and tend to focus on these in their expressions of concern, rather than symptoms per se. Life impacts of these conditions may have implications beyond those commonly appreciated in routine practice; these considerations will be applied to a future discrete choice experiment survey.
fundingGSK funded study (H0-15-15502/204821).
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